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Autoimmune Diseases | Last Active: Jun 9 2:23pm | Replies (91)

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@robinlundblade. @pamelalaa. Both of you are really worried about mycophenylate and maybe getting off of prednisone. Is this correct? All drugs are scarey to take. And they scare me, too. But, I give myself a couple of days to adjust to the new meds and if all seems OK, I go ahead with my life. I’m also on rituximab with hopes of coming off mycophylate. And I’m really working to get off prednisone. Yes, prednisone caused me some problems ( cataracts and osteoporosis). I had cataract surgery and can see without glasses for the 1st time in my life!! And I take enough calcium to keep my bones strong. Yes, take the risk!
What do you think your future would be if you don’t take a risk?

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Replies to "@robinlundblade. @pamelalaa. Both of you are really worried about mycophenylate and maybe getting off of prednisone...."

@becsbuddy agree! I’ve got new corneas, and I’m taking Boniva to protect my bones - so I’m all in as well. I’m at the point where I’m desperate enough for some quality of life that I’m willing to take a risk and hope for the best. I’m tired of being sick and tired so for whatever time I have left, it’ll be ride or die lol. The Rituximab is starting to work as I can finally move my left arm and my right leg isn’t dragging. Yay! 🙌