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← Return to Options if MAC goes untreated
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MAC & Bronchiectasis | Last Active: Dec 15 9:59am | Replies (96)
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Good Luck
My wife has been on 2 different sets of 3 and 2 of them have become resistant to her Mac . Now they want to start her on Arikayce which has bad side effects
I should her your post
She does all those other things you do
Replies to "Good Luck My wife has been on 2 different sets of 3 and 2 of them..."
Arikayce is what changed the game in my improvement and what has kept me stable. The damage the MAC can do is worse than any side effect. The Arikayce takes some getting used to but its very much worth the try and transition.
Larry, did susceptibility testing show the meds had become resistant?
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@larrycmb I did the Big3 on again off again Finnegan for many years. I still had MAC and little luck with those drugs due to side effects. Thats me!! Lots of people have no problem. When I was in a clinical trial for Arikayce for I want to say at least 18 months I did not have bad side effects from it. It was time consuming for sure. But Arikayce cured the MAC. I also understand Sue’s point of view. Each of us is different. I had “known” MAC for at least 7 years and probably longer. Arikayce got rid of it !! Good luck to your wife. Irene5