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Agree with your comments re docs/remuneration and Big Pharma @lkhender - I have been prescribed oral meds, Reclast, Tymlos, and Evenity.

I had horrible (NOT minimal) problems with Tymlos, but none with Evenity or Reclast and I’ve had at least seven lifetime infusions of Reclast. I did not want to begin Prolia and appealed to my doc to have one more Reclast infusion instead. It’s important to know that it’s not a one-size-fits-all issue.

Even with my constant messages to the doc to complain about the debilitating issues I was having with Tymlos, he recommended PT, pain management, an endoscopy . . . I suppose because the adverse reactions I was having were not listed on the Radius website, they couldn’t be related to the med 🙂‍↔️. After finally telling the doc I was pretty much finished with Tymlos, I stopped the injections, my symptoms cleared up within days and I found a new doc!

I guess that’s part of the beauty of Tymlos: the med doesn’t stay in one’s system long term and once there is cessation, the reactions clear up quickly . . . so there is that! Reclast and Evenity last longer - to the point where there is much information dedicated to how long Reclast remains in the body. Btw, after contacting Radius, some of my odd symptoms were added to the published list; not sure why.

Stay sunny everyone! Listen to your gut and do what’s best for you. 🌞

Cheers!

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Replies to "Agree with your comments re docs/remuneration and Big Pharma @lkhender - I have been prescribed oral..."

@beanieone did you ever try going down on the dose for Tymlos?

@beanieone hi i had l4l5 fusion 6 mo ago. Had to go on evenity. 7 mo now. 4 to go. I want to be on it another 12 and I can't. Want me to do reclast. Terrified of getting longterm bone joint and back pain, hips, knees and in my fusion scared to death. Have COPD LUNG PROBLEMS ALL MY LIFE. BORN 3 MO EARLY WEIGED 2 LBS. DO NOT HAVE ANY PAIN NOW. MON INV FUSION WAS PRETTY GOOD RECOVERY. I DONT WANT THE SHIT THAT CAN CONE FROM RECLAST AND OF COURSE ENDO GUY FROM MAYO ROCHESTER SAYS OH U DO FINE ON RECLADT. I HAVE SEVERE ALLERGIES WHICMEANS IM IMMUNE COMPROMISED IMMUNE SYSTEM ALL MESSED UP. HIGH BLOID P. SO SCARED OF ATRIAL FIB ETC. DONT KNOW WHAT TO DO. 2 BAD KNEES REPLACED 14 YEARS AGO WHAT DO DO. ?