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Complications with Peripheral Neuropathy

Chronic Pain | Last Active: Sep 7 9:22pm | Replies (28)

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@web28

I have the idiopathic form of PN that has advanced to the central nervous system. It started after acdf c3-c6 surgery(which was successful in correcting most of my severe spinal symptoms). Started with a hypersensitivity to touching any metal and soon advanced to fabric, both clothing and fabric/leather furniture. I started with the metal-LTT analysis blood tests(Orthopedic Analysis) and a patch test by a dermatologist. When both were negative for all metals I was referred to a rheumatologist and a neurologist. After many kinds of blood tests and neurology tests the rheumatologist found nothing that applied but I’m continuing with the neurologist. Tomorrow is my third. Other than prescribing baclofen for muscle spasms(my pcp put me on Gabapentin) he has not come up with a diagnosis but more importantly no kind of treatment. At the second appointment he said no to PT, myofacial release massage, pain management, even water aerobics, as they could increase the damage. At tomorrow’s appointment my husband and I have decided he needs to come up with a treatment plan or refer me to another neurologist. Very frustrating and scary as my nervous system increases its hyperactivity to perceived threats.

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Replies to "I have the idiopathic form of PN that has advanced to the central nervous system. It..."

Did patch test include any tests for sensitivity to surgical gkues ir adhesives used in the ACDF? I was recently reading someone's experience with thise types of sensitivities. Idiopathic PN is so challenging, because it's a matter of ruling out so much other stuff.

I can relate. I can't find a neurologist that can tell me what is going on, but sometimes my whole body starts spasming, jerking. I'm wondering if that means mine has also advanced to the central nervous system. If so, like you said, they can't seem to find any treatment plan. The surgeon keeps saying if will get less and less, it's the nerves reenervating or something like that. In the meantime they just give me muscle relaxers like you said that do nothing.