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3 month TYMLOS findings

Osteoporosis & Bone Health | Last Active: Sep 4 11:48am | Replies (12)

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@peter9526

Hello, I am a 48 year old male with severe osteoporosis of the spine discovered when fractures appeared in 4 vertebrae. I've been taking tymlos for a month and am taking calcium and vitamin D. I've ordered the good bones book. My hematologist doesn't think its cancer and endocrinologist doesn't think it's my parathyroid. Any thoughts or tips would be appreciated as this is new to me.

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Replies to "Hello, I am a 48 year old male with severe osteoporosis of the spine discovered when..."

@peter9526 - this sounds like a tough moment for you and also that you are in good hands with an Endo who is thorough and has put you on TYMLOS. Most people have terrific results, most notably in the spine, on TYMLOS. TYMLOS does drain your D, so you may want to ask to have that checked every 3-6 months to be sure it stays high. Mine dropped from 50 to 29 after only one month on TMPLOS. I upped my D and it went back up to 50 in a few months. The best source of calcium is food not pills, so try to find foods that will give the calcium you need. 2-3 glasses/day of unsweetened calcium fortified almond milk, is my go to. Not all almond milk has added calcium, so be sure to check the label. Depending upon your abilities once the fractures heal, you could ask if for a referral to a PT who specializes in OP to begin an exercise program, strengthening your back and other muscles in the right ways, improving balance, and most importantly, enjoying movement and an active life. Great Bones is a wonderful encyclopedia for this journey but it is also intensely detailed and can be overwhelming. Ideally, it will give you great information with which to ask your health care team questions and to engage in thoughtful care plan. You did not mention your DEXA scores, but hopefully in one year you will see great improvement from the TYMLOS. Keep us posted!