← Return to Has anyone been prescribed plasma exchange for small fiber neuropathy.

Discussion
Comment receiving replies
@roslyn2314

My neuropathy is idiopathic as well. However I also have coeliac disease and I had a shingles vaccine just before I came down with SFN which progressed rapidly after onset about 18 months ago. I have one prof of neurology who tells me there is no cure and another prof wanting to try different treatments. He prescribed IVIG which made no difference after 7 months of infusions . He is now talking about plasma exchange. I am trying to gather any info on the success or failure of this treatment. My SFN may be autoimmune driven may be vaccination result . All blood tests are completely normal. Almost like there is nothing wrong with me except I am loosing the ability to walk. And all the other symptoms that we all suffer pain tingling fatigue plus plus . Thanks for you reply anyway

Jump to this post


Replies to "My neuropathy is idiopathic as well. However I also have coeliac disease and I had a..."

@roslyn2314
Did you get EMG/nerve conduction testing, extensive neuropathy blood work panel, and testing for CIDP (autoimmune impact on nervous system)? CIDP requires a spinal tap to check for elevated proteins. Have you had MRIs of your lumbar spine/pelvis/hips?