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@dlydailyhope

@roslyn2314
I have idiopathic small fiber neuropathy. My neurologist said there really is no cure for SFN but if you know the cause, that is what is treated to stop the damage to small nerve fibers.

Do you know the cause of your SFN? Typical causes are diabetes/pre-diabetes/metabolic syndrome, drinking alcohol, cancer chemo treatments, vitamin B12 deficiency, Vitamin B6 toxicity, other toxin exposures, other deficiencies (like iron impacting oxygen flow through tissues), autoimmune attack of small fibers, blood vessels affecting blood and oxygen flow to nerve tissues (like peripheral artery disease), etc.

Were you told why they are treating you with plasma and how it could help your condition? You need to be careful not to get treatment that are expensive but there really is no guarantee they can help. I was never offered any treatment by 2 different neurologists for SFN. They did support me taking alpha Lipoic acid and Acetyl l carnitine supplements and taking an antidepressant for chronic nerve pain. I also use capsaicin and other nerve pain creams or lidocaine patches which have also helped. I am trying to change my diet and detox as much as possible to prevent further nerve damage.

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Replies to "@roslyn2314 I have idiopathic small fiber neuropathy. My neurologist said there really is no cure for..."

My neuropathy is idiopathic as well. However I also have coeliac disease and I had a shingles vaccine just before I came down with SFN which progressed rapidly after onset about 18 months ago. I have one prof of neurology who tells me there is no cure and another prof wanting to try different treatments. He prescribed IVIG which made no difference after 7 months of infusions . He is now talking about plasma exchange. I am trying to gather any info on the success or failure of this treatment. My SFN may be autoimmune driven may be vaccination result . All blood tests are completely normal. Almost like there is nothing wrong with me except I am loosing the ability to walk. And all the other symptoms that we all suffer pain tingling fatigue plus plus . Thanks for you reply anyway