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Airway clearance

MAC & Bronchiectasis | Last Active: Sep 10 8:01am | Replies (106)

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@bamaqueen

Sue, I totally agree. I hate fighting this battle with every single medication I have filled. Eliquis is another nightmare and totally over regulated to extending the patent years beyond typical expiration just to make money. We are supposed to be happy about the new negotiated monthly price in the $200 range instead of $500, but I can order it from Canada and get 200 tablets for $72. Makes me crazy. If you are not on Medicare you can get it for $10 with a coupon from Bristol Myer. If anyone needs a coupon it’s those of us on Medicare.
Arikayce retail over $15K a month. I was prescribed Linezolid and it was only $900 a month, but I found a coupon for $120 and never took a one because I had a severe reaction to the Imipenem infusion (another boat load of $ down the drain) and my ID doctor stopped all my antibiotics!
I just can’t do it. Why treat something if you can’t afford to live after?
I hope you get your daughter’s situation under control. Even more difficult when it’s your child.
I guess I need to vent to the higher ups like you said. How do I find that information? Maybe Rick will find it for me.
Thank you for your input. Hopefully my comments won’t be erased like in other worlds. 😉

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Replies to "Sue, I totally agree. I hate fighting this battle with every single medication I have filled...."

I agree with Sue. It’s your US representative and your senators you need to call. I’m happy to help you get the numbers if you can’t find them online. They have email forms, but when possible, I prefer to speak with someone. Have your meds, their costs, etc ready to share.
If enough people call, my experience has been that they often listen.