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Airway clearance

MAC & Bronchiectasis | Last Active: Sep 10 8:01am | Replies (106)

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@sueinmn

Rick, you said "The Medicare part d inconsistencies drives me crazy. How about the same plan for all?..." and @bamaqueen said her Advantage Plan doesn't cover Arikayce either.

Please, please, pleas bombard your Representative and Senators with these examples of inequity in Medicare, which was supposed to protect us all in our senior years. Ask them to clamp down on the insurance industry with all of its fancy-named plans to enrich them, not serve us.

Specifically, Advantage Plans came about because the insurance companies complained about needing a cheaper way to bring people in - they are paid a certain amount per year by Medicare for each enrollee, and that's all they get. So the more times they say "No" to a procedure or a referral the less money they pay out.

The drug issue is an even bigger issue. "Formularies" are agreed on each year by insurance companies and Pharmacy Benefit Managers (PBM's) - which are often owned by the insurance companies - creating Tiers of drugs with generics being cheapest, the newest patented drugs and biologics the most expensive.
Each insurance company sets the co-pays and "prior authorization" requirements for medications, then turns it all over to a tightly controlled group of people (who may or may not be medically trained) to run the process.

My insurance company changed PBM's this January, and medications my husband and I had been taking for a long time to manage chronic conditions had to be reauthorized - on first submission, both were denied as "not medically necessary" - appeals restored both prescriptions "for one year only." No person signs and can be held accountable for these authorizations. My daughter's PBM wants to authorize her biologic every 3 months, even though it is for a disease she'll have the rest of her life. Her latest kerfuffle with them caused a 4 month delay, forcing her back on high doses of prednisone - which she will probably pay for in her future with osteoporosis. I was just prescribed a new prior approval drug today, after having failed the conservative protocols. I will be watching closely to see how soon approval comes.

If you read around Connect, you will see we all need to lobby for change - with the people who regulate this, and not just amongst ourselves.

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Replies to "Rick, you said "The Medicare part d inconsistencies drives me crazy. How about the same plan..."

Sue, I totally agree. I hate fighting this battle with every single medication I have filled. Eliquis is another nightmare and totally over regulated to extending the patent years beyond typical expiration just to make money. We are supposed to be happy about the new negotiated monthly price in the $200 range instead of $500, but I can order it from Canada and get 200 tablets for $72. Makes me crazy. If you are not on Medicare you can get it for $10 with a coupon from Bristol Myer. If anyone needs a coupon it’s those of us on Medicare.
Arikayce retail over $15K a month. I was prescribed Linezolid and it was only $900 a month, but I found a coupon for $120 and never took a one because I had a severe reaction to the Imipenem infusion (another boat load of $ down the drain) and my ID doctor stopped all my antibiotics!
I just can’t do it. Why treat something if you can’t afford to live after?
I hope you get your daughter’s situation under control. Even more difficult when it’s your child.
I guess I need to vent to the higher ups like you said. How do I find that information? Maybe Rick will find it for me.
Thank you for your input. Hopefully my comments won’t be erased like in other worlds. 😉

Spot on, Sue. Medicare Advantage plans are mostly an advantage to the insurance companies, not patients. My husband and I have Medicare with a supplemental plan through my former employer, and I am constantly surprised at how much more coverage for actual medical expenses we have than relatives with Medicare Advantage plans have and at how seamless our benefits are. Of course, I must admit we didn't get that free gym membership....