← Return to CellCept

Discussion

CellCept

Autoimmune Diseases | Last Active: Sep 17, 2024 | Replies (38)

Comment receiving replies
@renm

Yes, I worry more about having flares than side effects. Flares are harder to deal with for me as they lead to more organ damage. Especially with my lungs. I do not want them to have more damage as I am already at a reduced capacity to breath.

Jump to this post


Replies to "Yes, I worry more about having flares than side effects. Flares are harder to deal with..."

Exactly. At least in the beginning with the Prednisone, there were side effects but I wasn’t waking up in excruciating pain every morning unable to walk. That’s the symptom that initially pushed us to up the steroid in the first place. Now I’m have obvious Cushing issues and lowering the Prednisone feels most important. I know it will be trading one set of side effects for another but hopefully it will mitigate the long term effects of both the disease and higher doses of Prednisone. It’s all just so hard to treat. I’m glad I have docs willing to try bc all bed all day sux!