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Cisplatin & Pemetrexate OR Carboplatin & Alimta - Keytruda
Lung Cancer | Last Active: Sep 6 11:03am | Replies (14)Comment receiving replies
@julie67, I'm sad to hear that you are continuing to struggle with this list of things. You did the right thing by seeking care when any surgical site appears red and/or puffy. It's not unusual to have some complication, and I'm glad that you've received some antibiotic cream.
You are under a great deal of stress. The diagnosis and treatment are hard for anyone to deal with.
In my case, I was diagnosed stage IV right from the start. It was devastating, but I continued to work and powered through (likely in serious denial) for two years. When the reality finally set in, I was a puddle, not able to get through much of anything without crying. I needed help to get my mind back on track, to focus on looking forward, and looking ahead to the possibilities of brighter better days. It's not easy, but I knew that I couldn't continue to remain in that dark place. Please don't take this as a criticism, it's shared as a concern for your well-being and future happiness. Have you sought any help for your mental health in the past? A psychologist or psychiatrist that specializes in cancer care may be helpful now, do you agree?
Replies to "@julie67, I'm sad to hear that you are continuing to struggle with this list of things...."
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Thanks Lisa, yes, in a very dark place. Yesterday I was well, i was making a plan. I have absolutely nobody now! The one friend I did have from 37 yrs ago even blocked me on FB when I told him I had cancer. Am going to my primary care in an hour for the back. I realize now it's what I was complaining about in the hospital as well after surgery--to the right of my spine where that stitch is. I can feel something under the skin.
Was going to tell him I need to talk to someone!! Not a coounselor right now but what to do! I am not sure I want chemo. I want to know the probability of what will happen....it goes to my brain, what happens? It goes to liver , what happens? Etc. I want to know what to expect w/ no chemo so I can plan accordingly. But I know he'll just tell me to go talk to the oncologist as that would be the only person who would know the probabilites, etc. So scrweed again.
Nurse navigator LOL called from Anthem this morn wanting to know if i needed anything! AGAIN.. lol told her it would be nice to have some kind of food if I felt like eating since I have no money--was using food pantries before surgery but can't stand in line now or lift and can't stand long to cook. Need something already cooked or microwavable. She gave me our Swirca again. Nope. Gave me Meals on Wheels. Nope, no help. I am officialy out of help from anyone. I am not gonna sit here and live my last months in this literal dump now ---even told the nurse navigator i had sh#t all over my feet. Did not care. I wish i had never had this surgery. I am wondering why so many had it...if their story is like mine that they would be 'cured' since it was only in the lung. Need to ask. It's bothering me. ok, off to my pribary which will be another joke and waste of time. Right now I just want this whatever out of my back. It hurst and it's all i can think about now. thank you again!!!