Reclast side effects

@dingus You are not alone! What they're afraid of, imo, is that we understand that they merely prescribe drugs according to what the sales rep and the literature from the pharmaceutical company (Big Pharma) tells them. They don't consider the side effects because they are told that they are "minimal." I would also venture to guess that they get financial support for prescribing the drug. I'm a retired RN, injured by Reclast and this is my opinion.

That's very encouraging. I have been extremely reluctant, but after much research and blood work, scans, and referral to endocrinologist, I have finally accepted that I will start Reclast. I am on the wait list for my first infusion this month. I'm so encouraged that you have had no Reclast side effects!

I agree. I am sorry that you are in this situation. I was in a similar situation with severe nerve damage in my arm after a flu shot in Oct. 2023. I have always gotten flu shots so this was really bizarre. My doctor did believe me and referred me to a neurologist. I was despondent because of lack of sleep and extreme pain. One thing that finally gave me some hope was the PT who said, "You will get better." The exercises didn't help, but her words of encouragement and belief in me made a huge difference. It took 9 months but the nerve pain did heal.
I hope you find someone who will listen and give you hope.

And if you take several of those "minimal" side effects and stack them on one patient at one time, that patient has a real problem. I'm sure you saw plenty of that as an RN as well as in your own situation.
What great insights. I'm going to try to get an appointment with an immunologist. Hopefully I can find someone that has some knowledge of Reclast side effects and is willing to share it.

Good luck!

Agree with your comments re docs/remuneration and Big Pharma @lkhender - I have been prescribed oral meds, Reclast, Tymlos, and Evenity.

I had horrible (NOT minimal) problems with Tymlos, but none with Evenity or Reclast and I’ve had at least seven lifetime infusions of Reclast. I did not want to begin Prolia and appealed to my doc to have one more Reclast infusion instead. It’s important to know that it’s not a one-size-fits-all issue.

Even with my constant messages to the doc to complain about the debilitating issues I was having with Tymlos, he recommended PT, pain management, an endoscopy . . . I suppose because the adverse reactions I was having were not listed on the Radius website, they couldn’t be related to the med 🙂‍↔️. After finally telling the doc I was pretty much finished with Tymlos, I stopped the injections, my symptoms cleared up within days and I found a new doc!

I guess that’s part of the beauty of Tymlos: the med doesn’t stay in one’s system long term and once there is cessation, the reactions clear up quickly . . . so there is that! Reclast and Evenity last longer - to the point where there is much information dedicated to how long Reclast remains in the body. Btw, after contacting Radius, some of my odd symptoms were added to the published list; not sure why.

Stay sunny everyone! Listen to your gut and do what’s best for you. 🌞

Cheers!

@beanieone did you ever try going down on the dose for Tymlos?

What did reclast do to injure you? I may have to go on it and am curious?

Unfortunately, @windyshores, I didn’t know about the decreased dosage prior to joining this forum. It is interesting that the same dose is prescribed for all of us - perhaps the “8 clicks” builds bone faster in smaller people (of which I am one) - who knows!? If I ever need to avail myself of Tymlos in the future, I’ll be sure to use the “Windyshores Method” 😆.

Cheers!

Can we discuss further the suggestions for hydration, Tylenol, allergy meds etc before and after the infusion. My questions/concerns are:
1) Some of you stated you hydrated at home before the infusion. Did you hydrate by drinking water or something
else plus water? Electrolytes? Or did you have an actual IV for hydration the day before? Of course, continue
to hydrate afterwards for several days.
2) What is the normal, most prescribed method of the Reclast infusion? Do they administer a bag of Saline first,
then the Reclast? Do they follow up with more Saline?
3 ) What is the length of time for the infusion of the Reclast? How much can this be slowed down? Does the Dr
have to include this on the RX order? I'm guessing so.
4). I'm aware of the discussions around cutting the dosages and/or spreading them out the course of the year. But
if my Dr doesn't do this, I might be setting myself up for serious adverse reactions.
5) CTX ? Baseline before infusion and then how often during the year after the infusion?
6). Do I need to increase my intake of Calcium, food or with a supplement in the weeks before the infusion? What about Vit D3 ?

Thank you for any suggestions!