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I feel like start running and not look back!

Caregivers: Dementia | Last Active: 1 day ago | Replies (124)

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@billiekip

Please clarify. What is the role of a social worker? What can they do for a caretaker? I am realizing that I can't do this by myself. I don't ask for love, recognition of being my husband's wife or even appreciation, but I do want him to cooperate ...going to bed for example. I see that the push back is becoming more and more stringent. I get upset and that ruins my night's rest. He doesn't want to take his pills, change into pjs, brush his teeth. Just civilized behavior. He wants to roll into bed with his street clothes on and nothing else done. He was always a strong -willed child, a self- centered man, so this behavior mixed with ALZ should be no surprise. The way he just stands around and watches me get ready for bed with a smirk on his face, leads me to believe that he is being passive/aggressive. Yes, we have a guest room and bath; that may be my next step. 57 years is a long time to share a bed, but the time is coming to make a change. The problem is that he can't do the nighttime routine ..needs assistant to get it figured out, so leaving him on his own won't get the job done.

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Replies to "Please clarify. What is the role of a social worker? What can they do for a..."

@billiekip - I am distraught for you & your situation.

To clarify: I am not in a situation as a caregiver; I am the one getting desperate for an expression of care from my partner.

I pay for 99% of everything, b/c I can (& am comfortable with that if this were an emotionally rewarding relationship). Up until 4 years ago, that was not the case: for our first 6 years we "dated", did things together mostly on weekends (we lived 28 miles away fm each other), split everything, etc. but we were not living together then, and both of us were working.

I'm still waiting for the appointment with the social worker, she was booked until October. I was told by the neurologist that the SW was there to help the family with "coping strategies" to deal with the everyday tensions caused by the disease. I will post as soon as I have the appointment.
I'm sorry if this is inappropriate to ask, but couldn't you put him in a care facility? Or hire help at least for the night shift? I know all that is outrageously expensive, but if you have the means.......