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Lichen Planopalaris hair loss autoimmune disease

Autoimmune Diseases | Last Active: Sep 4 11:42am | Replies (7)
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@suzannemoe

@charlottet @pennybieler58 Hello! I was diagnosed with Hashimoto's almost 37 yrs ago. In 2017 bald spots were found and diagnosed as Lichen Planopilaris. New spots stopped occurring for 7 years but have started again in March of this year, along with a red scalp. Treatment for the red scalp has not worked and frankly, I'm afraid to look for more bald spots. I don't know what else to do. I wear hats often, so I don't have to be self-conscious about it. I think I need to learn how to do scarves on my head 🙂 Do either of you have other Autoimmune diseases?

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Replies to "@charlottet @pennybieler58 Hello! I was diagnosed with Hashimoto's almost 37 yrs ago. In 2017 bald spots..."
charlottet | @charlottet | Sep 3 9:43am

Hi Suzanne;
Thanks so much for your message.
I have Mixed Connected Tissue Disease, a complicated condition that is chronic and baffling. It seems to me that having an auto-immune disease is akin to decifering a complicated puzzle, on an ongoing basis.
I have fatigue, mental confusion, a nerve condition, and a few undiagnosed things going. I am 71. Up until 6 years ago, I was hale hearty. Not anymore. I still walk an hour most days when fatigue is not plaguing me. Tomorrow I have a MRI to investigate the condition of the white cells on the top of the brain. This is important. If you lose too many, your lifetime is shortened. Not cool. Haha. Ya gotta laugh if you don't cry.
And you, Suzanne?

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