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Spouse denial of MCI destroying our marriage

Caregivers: Dementia | Last Active: Sep 10 3:39pm | Replies (17)

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@becsbuddy

@rottenweather123 Oh, my goodness, I’m so sorry that your marriage has turned to this. You say that you can’t drive, but is there a bus system in town or a cab/Uber program? You really need to be able to get out of the house and care for yourself. Do you feel safe at home?
Are there any support groups for LBD in your town? If so, and you can go, you might be able to find someone that you can talk to.
I feel so awkward here because I don’t even know what to say or what suggestions I can give you that you could research and then take care of yourself.

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Replies to "@rottenweather123 Oh, my goodness, I’m so sorry that your marriage has turned to this. You say..."

I’m moving back to the US after living in Mexico for 20 years. There are no services here for disabled people, ramps are rare, & even some doctors practice in bldgs with no elevators! This is no place to be for anyone as sick as I now am. On one hand, It’s been far easier to get MRIs, CTs, labs, even IVIG here but you have to go to MX City because health care in the rest of the country is definitely not, um, not good. I’d say more but I don’t want to offend anyone. It’s time to go home. I want to spend time together with my children & grandson before I get called home to the Heavenly Cosmos, where I have 2 children waiting for me. It’s an amicable agreement. It’s time for us to say goodbye. We had a lot of good years together, we got to live in Canada for a year, & all over Mexico. He’s got long COVID, he’s tired, he’s got no one to help him, no one to vent to, & his entire family expects him to be the fixer for everything. He had to take care of his brother for 5 months. It was back breaking work, bathing him, changing his diapers, etc & also to watch his brother go down so painfully with sepsis from bed ulcers that could easily have been treated adequately in the US but not in MX…..it was after amputation of his leg because of gangrene—the public health system in the hinterlands is that bad, they put off the amputation so long to the point that the gangrene was all the way up his leg. It was awful. And his mother is dying & it’s a very slow death. All the family has to take turns sitting with her 24/7. It’s really rough for him, being a caregiver for his mom & me. No one helps him or gives him a break being my caregiver, so he’s all alone with no relief, especially because I have so so many serious & rare autoimmune illnesses, with tremendous pain, & autoimmune atrophy of my smooth & skeletal muscles, I’m in a wheelchair. And if I can, I’ll come back to visit. I’m excited to live in the US again, a little worried about all the mass shootings, but oh well. It’s dangerous here, & it’s dangerous NOB (north of the border). I’m worried about the expense of all my medications. I’ll enroll in Medicare but I know how lousy it is. At least my meds are affordable here, but not in the US. But I’m excited to be going home, back to my own country. I’m sure the reverse culture shock will not be easy but I’m so happy that I’m going home.