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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 6 hours ago | Replies (202)

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@jasonl1012

It was difficult. I had to stay over four nights. But doable. Make sure you have someone that only does school-based tumors. Someone that has a lot of experience in the endonasal technique. My surgeons team has done over 4500 of them definitely not something you want a surgeon that does spine, other brain tumors, general neurosurgery, etc. I have my first follow up tomorrow. So far I have double vision off and on, blurred vision, headaches, and some definite pain at the tail bone(whatever that’s from). They took a graft from my left IT Band(outer thigh) for nasoseptal reconstruction. It’s barely sore. Also of note, they will bolt you into a halo so you’ll have 4 sore spots with scabs, just so it’s not a surprise.
Keep on on thriving!

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Replies to "It was difficult. I had to stay over four nights. But doable. Make sure you have..."

Jason, I'm glad to hear the endonasal procedure is behind you and you are definitely doing well enough to write an update. My double vision (after a craniotomy for a skull based tumor)
was not off and on, (as you are experiencing) but constant. It did resolve in about 3 months. I wish you continued progress and for you to be feeling your old self soon.

@jasonl1012, just checking in. How is recovery going? Have some of the vision issues gotten better over the past couple of weeks?

@citychica, how are you doing? Did you and the team at Mayo decide on next steps?