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@dingus You are not alone! What they're afraid of, imo, is that we understand that they merely prescribe drugs according to what the sales rep and the literature from the pharmaceutical company (Big Pharma) tells them. They don't consider the side effects because they are told that they are "minimal." I would also venture to guess that they get financial support for prescribing the drug. I'm a retired RN, injured by Reclast and this is my opinion.
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Agree with your comments re docs/remuneration and Big Pharma @lkhender - I have been prescribed oral meds, Reclast, Tymlos, and Evenity.
I had horrible (NOT minimal) problems with Tymlos, but none with Evenity or Reclast and I’ve had at least seven lifetime infusions of Reclast. I did not want to begin Prolia and appealed to my doc to have one more Reclast infusion instead. It’s important to know that it’s not a one-size-fits-all issue.
Even with my constant messages to the doc to complain about the debilitating issues I was having with Tymlos, he recommended PT, pain management, an endoscopy . . . I suppose because the adverse reactions I was having were not listed on the Radius website, they couldn’t be related to the med 🙂↔️. After finally telling the doc I was pretty much finished with Tymlos, I stopped the injections, my symptoms cleared up within days and I found a new doc!
I guess that’s part of the beauty of Tymlos: the med doesn’t stay in one’s system long term and once there is cessation, the reactions clear up quickly . . . so there is that! Reclast and Evenity last longer - to the point where there is much information dedicated to how long Reclast remains in the body. Btw, after contacting Radius, some of my odd symptoms were added to the published list; not sure why.
Stay sunny everyone! Listen to your gut and do what’s best for you. 🌞
Cheers!
What did reclast do to injure you? I may have to go on it and am curious?
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And if you take several of those "minimal" side effects and stack them on one patient at one time, that patient has a real problem. I'm sure you saw plenty of that as an RN as well as in your own situation.
What great insights. I'm going to try to get an appointment with an immunologist. Hopefully I can find someone that has some knowledge of Reclast side effects and is willing to share it.