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I have taken Mycophenolate for 7 years for ILD, Autoimmune Hepititis, and MCTD. It was recommended by my rheumy and pulmonologist in San Francisco who worked together to help me. It has worked very well for me along with 5 mg of prednisone. I have not had any major flare ups since I started. The one thing I do have is bone loss and diabetes probably due to many years of higher doses of prednisone before the Mycophenolate.
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I was just given Mycophenalate for Autoimmune Hepatitis after trying Budesonide,Azathioprine,Mercaptopurine at least twice and having very bad side effects to these,but I worry nothing will work, I can't take Prednisone either, my thyroid function is low and I have gained weight again. I am in remission for Lupus. Has your AIH improved and do you feel better? I feel like I keep hitting a dead end with medications.
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This is what I am so afraid of. But what is the alternative? If not taking this stuff I wonder what life would be like? I am currently on 15 mg of prednisone. 1000mg Cellcept 2x daily and infusion of Retuxamab. Do you feel the same? That without it life might be way worse?