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Yes 1 mg with one hour IV hydration and infusion of 1 mg over one hour with tylenol and I still had a fever for 5 days. I am quite sure spinal pain is worse. Some pins and needles in hands and feet. I am having another 1 mg next week and then meeting with doc about what to do next. I know he wants me on 2mg or 3mg in three months after the last 1 mg which brings me to 4-5mg for the year but I am going to discuss stopping if I have had enough to "lock in gains."
There is not long term plan for any of us as yet, at least not one approved in practice. If I could take a drug holiday I would do Tymlos after awhile. Another option if alternating Evenity and Reclast. I figure I have 15-20 years left. I want to see a clear plan for that but I doubt anyone knows.
My scores in spring 2022 after 18 months on Tymlos were -2.5 spine, -2.9 hip and -3.7 for femur neck as I remember. Dramatic improvements. I get my next DEXA this April. MY CTX is pretty low.
Replies to "Yes 1 mg with one hour IV hydration and infusion of 1 mg over one hour..."
Your numbers look great. You have me beat all the way around. And if your CTX is low you are probably having a good response. (how low) Assuming you'll redo CTX before the infusion to see if you need it. And if you don't, repeat CTX until you do?
I have 30 years left how come you're checking out so early.
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@windyshores If your CTX is low maybe you don't need another dose yet? Or you could do an even smaller dose. It's quite amazing (in a scary way) that you had a strong reaction even at a very careful 1 mg dose. I know you are perhaps extra sensitive but I think it still shows what terrible overkill it is to give 5 mg doses as the standard. Plenty of people are quite reactive to medications even if they appear to be quite normal and healthy. Sorry for preaching to the choir here.