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Short acting Ocreotide

Neuroendocrine Tumors (NETs) | Last Active: Sep 2 3:29pm | Replies (9)

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@sbds

We did find this out that there is extra help for Medicare patients with the drug companies or the hospital pharmacy that might help you. My husband was diagnosed in January 2022 with SBNET Grade2 stage4 well-differentiated neuroendocrine tumor. Had a successful surgery to remove primary tumor and 5 ft of his small intestines. Surgeon removed lymph nodes and 22 lesions on liver. He also had some on bones. The Octreotide 28 day infusion shot worked for 10 months. Then we got the scan that showed 6 lesions on liver. This is when they switched him to Lanreotide 120 mg 28 day injection. Then 6 months later scan done and showed too many lesions on liver to even count. I regret that we didn’t ask for a scan to be done in 3 months instead of 6 months. He then completed 4 cycles of PRRT and he had no problems even with having a serious heart condition. the scan shows his cancer is stable but because we waited to do PRRT he now has over 100 lesions on his liver and more on his bones. He now is getting MRI done every 3 months of his liver and a CT scan. Don’t be afraid to ask for a CT scan sooner . He is only 67 years old and we sure wish that there would only be 6 lesions on his liver instead of 100 lesions to watch and stay hopeful. The cancer doctors think he has this for a very long time. We were told that everybody is different with treatments. Good luck

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Replies to "We did find this out that there is extra help for Medicare patients with the drug..."

Oh no
I feel so sorry for your husband
I have been told that sometimes it takes the PRRT treatment time to fully work
I hope that is your husband’s case
Thank you for the short acting shot information
I will check it out
Good luck to your husband and you
Best wishes