In my opinion, the medical system should do "test doses" for everyone or at least for those prone to reactions or side effects, and those with other health issues such as heart, kidney, neurologial, autoimmune disorders. The annual 5mg if a matter of systemic convenience and individual compliance, I just read.

Also, the study posted on this forum showed that lower doses are effective, and many of us are small humans.

@dingus I'm sorry for what has happened to you. I post info about possible ways to avoid the disastrous consequences of Reclast hoping it will help some (including myself) avoid a disaster. As for what to do once it has happened I haven't tried to investigate that yet. I agree that everyone who has suffered these long term side effects deserves to be listened to and helped.

As I said I haven't investigated the long term effects but I certainly haven't seen any proven remedy for recovering from that mentioned on any of the osteoporosis groups. Gently mentioned steroids which I don't know a great deal about. I would guess that unless someone comes up with something specific for Reclast recovery, that you are in the same boat as those with chronic fatigue syndrome, Gulf War Syndrome, environmental illness (food and chemical sensitivities), long covid and so on. Long Covid has gotten more official recognition that those other conditions so maybe there will be some useful knowledge that will emerge from those studying and dealing with it. Those with these conditions are often ignored and sometimes thought to be complainers and maybe just a bit nuts. I've had extreme food and chemical sensitivities for 40 plus years and there were no "answers" for me. I have improved and can enjoy my life now but the over reactivity is still there, just more manageable.

But some people do recover completely from these little recognized long term conditions and you may also. Certainly it can get better. Reading about these similar conditions-situations might help you find things to help you improve and help with how to approach the problem. Best of luck to you.

I agree. I am sorry that you are in this situation. I was in a similar situation with severe nerve damage in my arm after a flu shot in Oct. 2023. I have always gotten flu shots so this was really bizarre. My doctor did believe me and referred me to a neurologist. I was despondent because of lack of sleep and extreme pain. One thing that finally gave me some hope was the PT who said, "You will get better." The exercises didn't help, but her words of encouragement and belief in me made a huge difference. It took 9 months but the nerve pain did heal.
I hope you find someone who will listen and give you hope.