Good morning, Bonnie (@bb0753

Yup, I'm still taking EB-N5, that vitamin combo (or, as they call it, 'medicinal food'), with the P5P B6 you inquired about. I had paused taking it for a month but have now resumed. I had been taking EB-N5 twice daily for a year, but when my supply ran out, and the manufacturer wrote to ask if I wanted a new supply, I decided I would get the advice of my two neurologists. ('Two' neurologists sounds kind of posh. I've ended up with two neurologists purely by accident. One is quite far from home; I had thought to 'drop' him, but both neurologists appear eager to continue working with me; in the end, I decided I'd keep both.)

You may know from other posts I've left that last spring, I came down with a nasty sepsis infection. My particular 'brand' of sepsis, saddling me with a host of sepsis symptoms, also some considerable added balance challenges, challenges in addition to the ones with which my PN had already gifted me.

Up until the sepsis, I hadn't thought EB-N5 had done me any harm (in fact, it may have done me some good; a second EMG showed no progression in my PN). But, because sepsis, along with PN, had made a Mulligan stew of my balance, I couldn't be sure if continuing with EB-N5 was worth it. That's why I sought the advice of my two neurologists––and both recommended continuing. And so I have.

Can I personally endorse EB-N5? Not really. Can I say any bad things about it? No. That's been my experience with PN and the gazillion hoped-for-helpers––pills, ointments, therapies, etc. … you name it––we recognize that we have an incurable disease; nonetheless, we pursue relief––even temporary relief––fingers crossed every step of the way.

My very best to you, Bonnie.

Cheers!
Ray (@ray666)