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Replies to "I understand totally. In a normal world I would say move on. But medicine is no..."
Thank you ! Your situations sounds much like the battle I've been battering for years. I finally was diagnosed last year, and now can't get anyone to help. Too many of these Dr's care about themselves, than helping people. I think they take the HYPOCRITE oath. Just don't seem to care much about people. I thought where I finally got to was finally the right place. Maybe the search is not over ??? I'm so sorry for you too. It's exhausting trying to get someone to help. If you find one right one, the next 3 steps trip you up, and your just more tired and frustrated. Good luck ! I hope you will find the right solution, and right people go help you feel better.
I have MS, found that GABA pathway is on dendrite, so to stop spasms, I take gaba. Not gabapentin, GABA from health food store. It releases spasms. I take as needed, to release spasms, if I take too much I feel tired so I counteract with activity which uses the gaba. I started at 200mg and it unfroze my ptsd feeling brain thing I felt emotional. I take over 3000mg a day to move my hands legs etc. I have met others doing something similar, But for pain.
It is used in near beer in Britain. It's tested on pets for years.
Do research, but is what hospital uses to release muscle spasms in ideal.
If you look it up, you will see that taking gaba by mouth, a larger dose is required.
I have a theory that the reason taking oral GABA increases brain gaba, has to do with the body prioritizing flight or flight large muscle movement ie in the legs. Taking gaba would increase body gaba, leaving more in the brain, as it's made on dendrites.
That's my theory, as I lose fine motor hand and arm control as my first sign of low gaba .
Maybe there's a feed about pain and gaba, I happened yo meet someone taking my same dose but for severe back pain.
Note that arthritis is also autoimmune, and may be a similar mechanism as MS which they claim causation by rx to mono virus present in 90% of population if you catch my drift.
I totally understand the quasimodo thing, because I deal with that often, probably different mechanisms but it still sucks. Good luck
Wow! You said, "But according to them no further action is needed unless I want opioids." Many of the people on the Chronic Pain group would be beating your door down to get the name of that doctor. You, however, want a solution, not to mask it.
I have been there, with spinal arthritis and stenosis, as well as arthritis just about everywhere, a lung disease, and a heightened inflammatory response to...everything. I was referred to a Pain Management Program (outpatient, run by my clinical system.) There, I was thoroughly evaluated, given just enough non-opioid medication to take the edge off the pain, and referred for serious PT by a "wizard" who can read my body and help deal with what is going on. In addition, I was taught how to use meditation, guided imagery and other techniques to work through the pain, got some help with sleep issues, a little counseling, and basically got my life back.
Is there anything like that available to you? If not, Mayo offers in-patient programs.