Connect
← Return to Recently Diagnosed - Astrocytopathy
Discussion
Recently Diagnosed - Astrocytopathy
Autoimmune Diseases | Last Active: Sep 4 12:02pm | Replies (2)Comment receiving replies
Welcome @sery, You are definitely not alone. You might want to read through the following discussion to connect with other member discussing GFAP.
-- Has anyone been diagnosed with GFAP: https://connect.mayoclinic.org/discussion/has-anyone-been-diagnosed-with-gfap/
You also might find the article listed in the discussion above helpful for learning a little more about the condition.
Here is a link to the same article and another one that is similar:
--- Autoimmune glial fibrillary acidic protein astrocytopathy: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6522205/
--- Autoimmune Glial Fibrillary Acidic Protein Astrocytopathy: A Review of the Literature:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6290896/
You mentioned that although recovery has been a battle you have been doing great. If you don't mind sharing, what was the most difficult part of the recovery?
Replies to "Welcome @sery, You are definitely not alone. You might want to read through the following discussion..."
Connect
Thank you for the resources. Regarding my recovery, my CNA was what was targeted, and turns out with out a proper nervous system, you can't really walk lol. So at the ripe age of 22 I was using a walker. I am now almost 23 and can fully walk and run for short distances. I also have an accommodative dysfunction (essentially my eyes spasm when trying to focus them) so being back at school is a real learning curve. Thank you for asking.