1 Prolia injection

Posted by debis67 @debis67, Aug 30 11:45am

I had 1 Prolia back in Feb 12. Many side effects ended up in ER for mega steriods. I am going to relay with Reclast, which was due on Aug 12, but my CTX marker is only 89. I was advised to wait and take another CTX in 6 weeks. I will be having it on Sept 16th. I am scheduled to go out of State on the 23rd - Oct 3. Does anyone know how fast an CTX bone marker can jump high? Has anyone had a CTX low like mine and went ahead and had Reclast? Been a nervous wreck since Feb. over this Prolia.

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Hi @debis67,

I don’t blame you - I had horrible experiences with Tymlos. Unfortunately pharma companies don’t design dosages based on our age, height, or weight and it’s not a one-size-fits-all world. And, docs don’t always know what’s best for us - I’ve not yet met one with a giant red “S” on his/her tee-shirt - but I still feel they should at least be included in our informed decisions. I guess a doc would need to sign the prescription/dosage orders to receive a smaller dose of any med.

Kindest regards to you as you make the decisions best for you; there are members who post excellent information on this site and I have availed myself of their knowledge on more than one occasion. Cheers!

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@beanieone

How can one determine when they are “half way through” with the infusion; it also includes saline? Does anyone know why 5mg vs 2, 3, or 4 is indicated? Reclast has been around for quite awhile now and, as far as I know, the same dosage has been prescribed for every infusion I’ve had (since 2011).

Talk to your doc, find out if there are any other solutions, and find out the “black and white” of Reclast. Is there any research that answers the question of whether or not a smaller dose of Reclast is effective and how to determine the amount that has been infused (especially based on the patient saying, “Stop, I’ve had enough!”)

Best wishes to you as you work your way through this dilemma. Cheers! Go Penn State!

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I have never heard of telling them to stop the infusion when it got to half way. My Dr said he will only give me less then 5 mgs only if he see in Black and White that it can be done. Otherwise it’s fraud he said.

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Another black and white presentation (thanks to someone on another thread)

Shared files

low-dose reclast (low-dose-reclast.pdf)

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