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← Return to 3 month TYMLOS findings
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Thank you @awfultruth! I am holding on to every bit of encouragement from comments here. They mean so much.
I had 3 Reclast infusions, 2016, 2017, 2018, then a holiday, then 2 treatments, 2020-2021. Everything stayed basically steady (not statistically significant improvement) - (OP T-3 in spine, osteopenia in hip and femoral neck). My last DEXA in 2023 showed again no changes. I thought this was good news but the docs here (Boston teaching hospitals) are aggressive so I went on TYMLOS in May with the goal to get me out of OP for the spine, where Tymlos has shown the most impact. I also just started to work with a PT 2/wk who specializes in OP, on strength (weights) and resistance training (machine weights and pulley). I’ve worked out my whole life and now need to be careful about what I do and what I shouldn’t do. Clearly something in my body is not allowing new bone to be made. I’d love to know how to dig deep to find out what is preventing me from responding to these treatments. If anyone has a blood or other test that they’ve heard could reveal something, I welcome your thoughts. I have Great Bones but I think that is too much information to present to my doc without impacting the relationship. I hope to hear from my doc next week as these results came back over the weekend. I’d love to see that chart if anyone has access. I’ll try to find it online too.
Thank you so much for your positive thoughts!
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@esb13 On the postive side a -3.0 is not that bad. Not great but still not that bad. I would want to improve it and I wouldn't consider it aggressive to try to improve it. Just normal common sense I'd say. As for working out, that is great that you are doing that. The exercises that have the most evidence for building bone behind them are the squat, deadlift, overhead press and jump drop. That's because of Belinda Beck's LIFTMOR and subsequent studies. That's what they used and they got the bone density improvements.
As for what else may be going on, well, that's a huge topic. I read Lani Simpson's book, and had consults with her and I read McKormick's Great Bones book. I never figured out what's wrong from all the blood tests. I could not stop losing bones with natural means but I have improved greatly by adding Evenity to all the exercise and calcium and and and ...
That said I'm still glad I did the extra testing.
Hopefully you will get the improvement you want on Tymlos.