Connect
← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Discussion
My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 hours ago | Replies (582)Comment receiving replies
@loribmt
He is doing better. He developed Cytokine release syndrome on day +1 and had chills and fever for a few days until they gave him Chemo on days 3 and 4. The fever went away by day +5, but then the diarrhea came. He is on day +9 and I think everything is "back to normal". His white blood count is down to basically nothing now and he gets a bag or two of platelets every day. His hemoglobin is slowing dropping, so his fatigue is increasing. But other than a few rough days at the very beginning he is doing well and is in good spirits. He jokes with the nursing staff and has made friends with some of the other transplant patients. He will be inpatient for another 10 days at least. It depends on when he starts grafting.
Replies to "@loribmt He is doing better. He developed Cytokine release syndrome on day +1 and had chills..."
Today is day +38. He is slowly regaining his energy and appetite. His bone marrow biopsy shows 100% donor cells. His blood counts are steadily increasing. He still has to get magnesium and fluids a few times a week. He has no signs of HVGD. The only persistent issue he has is hand tremors. This makes it difficult to eat and he is frustrated not being able to do simple things for himself because his hands shake so badly.
Connect
Hi @caregiverx2, As I mentioned before, the first couple weeks post transplant are usually the most challenging days. But hope is on the horizon as your husband nears engraftment. He’s at Day +9 and engraftment can happen as early as day 10 but usually around 14-ish and beyond. When that happens and you see increases in his neutrophil count, the march to recovery is on the move! By the time there are detectable amounts in the blood, the cells have already been busy inside his bones sending out protection. It’s really fascinating! Anyway, I digress. 😅
I’m happy to hear your husband is doing well and keeping his spirits up. It’s really special when you find others going through the same situation so I’m happy he’s making friends with other patients! I still communicate quite often with a friend I made during my transplant (and hers). She and her husband were in the same hotel where we stayed for 4 months so we became fast pals! Unfortunately they live 1,000 miles away so we seldom see each other. Twice the planets aligned and we had our Mayo-Rochester followups at the same time. That was fun…we got together for a couple dinners.
Thank you for the update! Both of you hang in there~this gets better. ☺️ Think Engraftment! 🧬