Hi there,
First of all, congratulations! Super exciting news but obviously daunting and stressful given the bronchiectasis. All of your concerns are completely warranted and understandable! I would wonder all of the same things and have the same concerns. (I'm 46 now and have a 2.5 year old but wasn't diagnosed until after she was born in 2022).
I see doctor Adrizzo-Harris at NYU. I would call her office and explain your situation. She only sees patients with bronchiectasis so perhaps she'll take you on. (When she took me I was also unable to book an appointment with her online so I called her office directly and during my visit I asked her about this and she said she's only taking patients with bronchiectasis). She's fantastic and would definitely help to have all your doctors and records under one roof.
I think the good thing is you've already been on antibiotics and hopefully will be clear and fingers crossed on your latest sputum culture. Hopefully your bronchiectasis is stable even if it's slightly worse since the CT scan in May. Do you have any other complicating factors? I think the best thing you can do is continue taking precautions like mask wearing, get your COVID and flu vaccinations, continue drinking filtered water and really try to do the airway clearance using the nebulizer and Aerobika twice a day to help ward off infection. I know it's such a pain in the neck with everything else going on (work/pregnancy/life!) but at least it will give you peace of mind knowing you're doing all you can.
Do you have a baby bottle sterilizer for the nebulizer and Aerobika parts? Anything you can do to try and cut steps out of the routine so there aren't roadblocks to doing airway clearance can help (I have found that to be helpful).
I guess the big questions for your OBGYN are what happens if you do get an infection and are certain antibiotics safe to take during pregnancy. I think you're probably already categorized as 'high-risk' given your age and they're used to dealing with so many complicated situations and can help guide you along with input from the pulmonologist.
Easy to say but try not to worry too much. Practice visualizing your lungs expanding as you breathe and think of how healthy and strong they are. Take care of yourself and be excited about this baby!
Thank you for the encouragement. I called Dr Addrizzio Harris office, the receptionist said that the Dr will review my records (from my 1st dr who is also at NYU) and will call me back if Dr Addrizzio decides to take me or whether she will refer me to another doctor. That was about a month ago and I didn’t hear back from them. I am now a patient of Dr Kamelhar who participates in BX events along with Dr Addrizzio, so I think he is a good doctor for this condition as well. The problem with May scan is that it was an abdominal scan, so only part of the lungs was captured. My last lung CT scan was done in January of 2021 and I was supposed to redo it last Friday. But what can you do 🤷♀️. I lived my last 20 years of my life thinking that I was infertile, and here you go. I do have a 15 year old who I conceived with the help of the pills, but I was young back then. We did want to conceive, but given my age and fertility struggles I am very surprised that I am pregnant.