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I am afraid of trying Tymlos and other drugs due to side effects
Osteoporosis & Bone Health | Last Active: Sep 27 2:28pm | Replies (151)Comment receiving replies
Hi I don’t know if this is where I type my concerns about Reclast, but I had a Reclast infusion 2 weeks ago and am still dealing with side effects. When one stops, another starts. I’m so fearful of repeating Reclast in a year. I’ve had bone pain, headaches, chills, aches, swelling in arm and hand which went away and am now dealing with eye aching and headaches again. My energy level was horrible for 2 weeks, but it is improving a little. I don’t think I’ve ever felt this sick before. Prolia didn’t help me so my Dr recommended Reclast. I am so afraid of aging and breaking bones easily with my osteoporosis, but I feel like Reclast is like a poison at this point. Can anyone offer advice or experiences with Reclast? I was told the side effects would last for 3-5 days. This has not been my experience. Thank you.
Replies to "Hi I don’t know if this is where I type my concerns about Reclast, but I..."
This sounds very difficult and discouraging for you. It is somewhat reassuring to read loriesco's reply and I hope these awful side effects diminish soon.
I am scheduled to have my first Reclast infusion this month and I am really hesitant and anxious. I've tried for many years to avoid this but my most recent scan scores clearly show that I need an intervention. Due to a blood protein issue, I can't use the anabolics, which I was hoping for as many of the comments reflect the benefits of managing the dose, unlike the Reclast infusions.
I hope to hear that you feel better soon.
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honestly - give it some time. It sounds like its working for you! There are tests to ask your doctor about P1NP, CTX, bone imaging and DEXA scans. If you see the numbers going in your favor you might feel better about ingesting the "poison." (it does feel that way, right?!) I have been on other really HORRID medications but my first Reclast was unbelievably bad. you are having bone aches because the medicine IS stimulating your system to do what the medicine is for. Don't give up. I was promised it wouldn't be bad when I go next time. The research does substantiate that! (I read it) but they put me on the Tymlos so I get a break for 3 years before I get another Reclast. Its the Cadillac of the bone meds so get the support you need to stay the distance! Talk with your doctor's endocrinology team if they have one. Call the pharmaceutical company too. Six months after I did the reclast I had an xray of my spine. Six months after that I had another xray. My surgeon could SEE my bones were denser!!! Hopeful, for sure! Good luck.