Pelvic pain

Posted by dudashen @dudashen, May 11 11:51am

Does anyone else suffer from chronic pelvic pain?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

I did, yes. It's gone now. I'd had it most of my adult life until I was 55 and had a hysterectomy. Then only, was it diagnosed right. When I was 40, I was told I had a couple fibroids that would not even prevent me from getting pregnant again, and carrying a baby to full term. So, at 42, I did exactly that. At about 50 yrs, I even had an internal ultrasound, which again found fibroids, but they were small and many. In all, I bore 3 children, safely. Somewhere about age 27, the pain was more or less constant. I had a GYN/OB and I was raised to not complain about pain, so I didn't. Until I began to have stress headaches really bad. Then, my Primary had my head Xrayed, found nothing odd and again, dismissed it and me. So, when I woke up from the hysterectomy, my first thought was that the pain was gone. Completely. It was wonderful. The results of the lab tests on the uterus, once it was out, came back adenomyosis. My whole uterus was riddled with cysts deep into the muscle tissue. No fibroids were found, at all. It is absolutely not unusual for endometriosis to end up outside the uterus, attaching to various parts in the abdominal cavity, and causing pain. Likewise, scar tissue from major injuries and/or sloppy surgeries. With all the advice of others to have your bladder checked out, I suggest that you find yourself a Urogynecologist. That's who did my hysterectomy because, first, I'd gone to see her for recurrent UTI's. She even did a rectocele from my 3rd childbirth.

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@rashida

@loriesco I live in Ontario, Canada. San Diego is too far, and unaffordable. Unfortunately unlike Americans, Canadians are under a government health plan and treatments have to be approved by the health plan.

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Well, we in the USA, are often subject ti the whims of our health insurance policies, and still far too many who cannot get health insurance through employers, or have such high deductible & co-pays they are unable to fully use it. And there's a ream of paperwork for referrals, prior authorizations and pharmacy benefits management rules and loopholes to be exploited the corporate entities to deny coverage--in essence they are not denying care, just refusing to pay for it.
Back to your pain issues--
If you are female and particularly in peri-menopause & menopause, but also for post partum women, hormonal changes can significantly impair our vulva, and urethra, as genitourinary syndrome of menopause (GSM, or GUSM, or previously, vaginal atrophy) causes the tissues to thin out, become more likely to have microtears from wear and tear of life, etc.
So, discuss estradiol or similar treatments with primary care--should be a no brainer, but....You can get estradiol cream to apply topically, or a suppository form. Treatment is usually 2x a week. But first couple weeks might need daily dose. Mark Cubans costplusdrugs.com carries generic cream at a reasonable cost. It is so worthwhile even if one is no longer sexually active because UTIs can be significantly diminished in aging women. And oftentimes it seems it's neither a UTI nor IC but the GSM that is causing the pain & difficulty. The Menopause Society has some resources and physicians listed. There are a number of women physicians on Instagram and Substack who are trying to do more for women across the board with respect to medical care and research I to our health needs.

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I'm a Canadian and I'm grateful for our medicate. it's not perfect but I recall my American relatives being afraid to go to the doctor due to the cost.

I agree with above. You have to be your own advocate. You know your body better than anyone else. I'm aware that it is difficult to advocate for yourself when you are in pain. That's best time to go to your doctor.

I don't have pelvic pain. I'm recovering from an operation for spinal stenosis. I've learned more about how to deal with it from this blog and from my business colleagues at my business networking group than from my surgeon.

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