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NASH and cirrhosis of the liver.
Digestive Health | Last Active: Oct 28, 2023 | Replies (94)Comment receiving replies
Thank you for tagging me in this discussion, @colleenyoung! And hello to you, @mollyb1968.
Getting a diagnosis of any type can certainly be scary, especially when it comes as a surprise. A range of emotions, including shock, sadness, and even angry are common. I can tell you that when liver disease came up in my family recently there was alot of denial and resistance to making changes/seeking care, which of course is not very productive.
It sounds like you are being proactive and very motivated, which is so wonderful. Ultimately you are your own best advocate. Yet navigating all the information being thrown at you can be a lot to digest.
As Colleen mentioned, there are a lot of great resources out there that may assist in learning more about NASH and feeling prepared for upcoming appointments. Mayo Clinic has a guide of high level questions to ask the doctor here. These are a great starting point!: http://www.mayoclinic.org/diseases-conditions/nonalcoholic-fatty-liver-disease/diagnosis-treatment/preparing-for-appointment/ptc-20211651
The American Liver Foundation has a wealth of information and resources. For example, here is a guide they have for those newly diagnosed with NASH. This may have useful information. http://www.liverfoundation.org/downloads/alf_download_921.pdf
-Melody
Replies to "Thank you for tagging me in this discussion, @colleenyoung! And hello to you, @mollyb1968. Getting a..."
I have a question: Since being newly diagnosed with cirrhosis, I have been having problems with my sugar dropping. It has never done this before and has always been high (200's, 300's) but now is going down in the low 50's. After my sugar drops, I feel awful. Sometimes I can tell when it is dropping and other times I can't. It woke me up this morning before 6 a.m., feeling bad, shaky, sweaty and feeling like I was going to pass out. Could my liver have anything to do with this or is it just sugar related? Does anyone know. I see the doctor in a couple of weeks but just looking for advice. My feet and legs have been swelling also. I was just at the lung doctor and he was stating that I had considerable fluid in my legs. I am on Lasix twice daily for that. Any suggestions would be appreciated. Thank you in advance.
@mollyb1968, I am so sorry that you are feeling awful. I do not have the answers that you are looking for. Even though have a scheduled appointment in a couple weeks, I would encourage you to call the doctor's office and relay your concerns to them. That way the doctor can let you know if this needs to be addressed now. Unfortunately, the reality is that changes can occur quickly with cirrhosis. You have been diligently monitoring your health; you do not want to become complacent now. You might need a medicine adjustment, or you might need your appointment earlier. Let your doctor make that decision for you.
Let me know what you find out.
Rosemary
I talked with my primary care physician and he adjusted my meds for the diabetes. I will keep my appointment on the 12th. Thank you for your advice.
@mollyb1968 How great that you are being proactive!
Hi @mollyb1968,
Swollen feet can be a common issue with diabetes. Although some of the causes for swollen feet and legs in the following discussion are different, you may find other members who have experienced some of the same symptoms as yourself here: http://mayocl.in/2gU3wsB
Also, according to Mayo Clinic, cirrhosis can lead to fluid accumulation: http://mayocl.in/2fSGiC5
@mollyb1968, I sincerely hope you find much-needed relief soon.
@mollyb1, I'm happy that you communicated with your primary care physician. I hope that soon the meds adjustment will help you feel better. As @kanaazpereira stated, swollen feet are a common issue with diabetes. Also with cirrhosis the body can retain fluids (ascites). I also was taking Lasix with my liver disease for the swelling. Be sure to read the link she provided for more information about that. I'm hoping the best for you at your upcoming appointment.
Rosemary
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Thanks Melody! I always appreciate your guidance to resources.