Hello everybody,
Last week we had the appointment with the new neurologist after he reviewed the results of the MRI plus the neurological evaluation, no surprises there : his diagnosis is Alzheimer's.
He told us that he may be a candidate for the LEQEMBI treatment with infusions. He was very clear about the possible side effects which sounded terrifying and also said the rate at what the disease would slow down assuming it works would be only 28%. In order to be sure he’s a candidate he will be having a PET Scan to locate the areas of the brain where the proteins have accumulated and caused the disease.
I wanted to ask here about the experiences other patients have had in using that drug, to me it seems the seriousness of the side effects is definitely out of proportion to the possible positive effect in slowing down the advance.
Plus, the doctor said Medicare covers only 80% of the cost and the rest which we would have to pay for is about $ 25,000 per year! and the treatment goes on for 18 months!
I appreciate your insights.