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Loss of My Life, My Future Because of Alzheimer’s.

Loss & Grief | Last Active: Sep 1 10:48am | Replies (3)

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@SusanEllen66

@gingerw thank you.
Denial. The game we’re playing right now is hide it under the carpet and maybe it’ll go away. That’s my family not me. I acknowledge my disease every time I meet somebody and they need to know I do however my family that’s too much they are still looking at me like really are you kidding me? You’re fine. I feel like I have to prove to them that I am really sick. It’s frustrating.

My biggest problem right now is Ataxia. That is causing me more problems than anything else. I cannot walk without a walker and my balance is so bad that if I don’t have the walker, I crash into the walls. I just had to get eyeglasses for the double vision. It’s just not a pleasant disease either so both of them mixed together. Gives me quite a job every day to stay sane.

Ah, but my sanity remains in place when I place my troubles into the hands of Jesus Christ. He is the rock on which I stand. He will neither leave nor forsake me. I am blessed.

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Replies to "@gingerw thank you. Denial. The game we’re playing right now is hide it under the carpet..."

@SusanEllen66 We cannot control how family and friends will see a situation. For them, it may be a reminder of how they could also be. It may be they don't know how to support you, or may not hear you when you offer up tips to help you. Remember, their lives change too, with your diagnosis.

Can you check with your medical team, and ask how they can help you with the ataxia issue? There may be some correlation and parallels they can address.
Ginger