Connect
← Return to Loss of My Life, My Future Because of Alzheimer’s.
Discussion
Loss of My Life, My Future Because of Alzheimer’s.
Loss & Grief | Last Active: May 7 7:22pm | Replies (24)Comment receiving replies
@gingerw thank you.
Denial. The game we’re playing right now is hide it under the carpet and maybe it’ll go away. That’s my family not me. I acknowledge my disease every time I meet somebody and they need to know I do however my family that’s too much they are still looking at me like really are you kidding me? You’re fine. I feel like I have to prove to them that I am really sick. It’s frustrating.
My biggest problem right now is Ataxia. That is causing me more problems than anything else. I cannot walk without a walker and my balance is so bad that if I don’t have the walker, I crash into the walls. I just had to get eyeglasses for the double vision. It’s just not a pleasant disease either so both of them mixed together. Gives me quite a job every day to stay sane.
Ah, but my sanity remains in place when I place my troubles into the hands of Jesus Christ. He is the rock on which I stand. He will neither leave nor forsake me. I am blessed.
Replies to "@gingerw thank you. Denial. The game we’re playing right now is hide it under the carpet..."
I am sorry to hear of your issues with Dementia. There are 5 children in my family, we're all past 60, I'm 77. Four have Dementia, my youngest sister thinks she may have it, just not diagnosed. I have no symptoms, but I'm Stage 4 Kidney disease. When my oldest sister, to whom I was closest to, announced her dementia, I was definitely guilty of hide and go seek. Deny & she'll be better was the way I hid the disease at first.
As it progressed, the symptoms came out very loud & clear. She didn't know me. Now those of us in town have breakfast together once a month with time racing against us. I am using what I learned with my now deceased older sister to support my brother when we're together. I pray for cures for healing this terrible disease.
SusanEllen66 I Was just diagnosed with MCI this past year. Family members say the same "you're okay". My answer is you don't live with me. My husband knows differently. The future scares me when I think of what may happen but Christ is indeed in control. We are blessed. This Mayo Clinic Connect has helped me but has also opened my eyes as to what might be ahead for my husband in caring for me.
Connect
@SusanEllen66 We cannot control how family and friends will see a situation. For them, it may be a reminder of how they could also be. It may be they don't know how to support you, or may not hear you when you offer up tips to help you. Remember, their lives change too, with your diagnosis.
Can you check with your medical team, and ask how they can help you with the ataxia issue? There may be some correlation and parallels they can address.
Ginger