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Anyone diagnosed with Phyllodes tumor?
Cancer | Last Active: Oct 7 3:59pm | Replies (66)Comment receiving replies
I recently (5 days ago) had two tumors removed from my breast. One was a borderline phyllodes tumor and the other was believed to be a fibroadenoma but turned out to be a benign phyllodes tumor. The margins were not removed from the one believed to be a fibroadenoma. They found atypical ductal hyperplasia and due to the rarity of these tumors and the confusing pathology report they are sending my info to Boston for a second opinion. As I navigate the internet searching for any and all information about phyllodes tumors I am shocked at how little information there is. I am feeling quite overwhelmed.
Replies to "I recently (5 days ago) had two tumors removed from my breast. One was a borderline..."
Some searches I did:
Where is phyllodes breast cancer research being done? Duke University and hospital. Dr. Rosenberger is the founder and Principle Investigator of an 11-site multi-center collaborative network of Comprehensive Cancer Centers that research phyllodes tumors. You can always get a second opinion from a cancer center if you wish.
https://surgery.duke.edu/divisions/surgical-oncology/research/research-laboratories/phyllodes-tumor-research-phytr
Science Direct always brings up some of the latest info - they have standards on the quality of research shared, but you’d want to check out specifics on any information you find on the web.
Here’s an August 2024 article that saying EGFR (epidermal growth factor receptor) mutations are a good target for treatment of early phyllodes tumors, using EGFR inhibitors. Also notes that P53 (tp53) is often low in phyllodes tumors, so your pathology report might note that. P53 inhibits cell proliferation.
(Sorry long link)
https://www.sciencedirect.com/science/article/pii/S1936523324001256
@danielleruddy, I moved your post about phyllodes tumors to this existing discussion where you can meet other members like @yellowdoggirl1 @ash2021 @johnsoncs1 @ssinkey @marvinjjc @cheddar @sarapusc @michelle0509
Read more here:
- Anyone diagnosed with Phyllodes tumor? https://connect.mayoclinic.org/discussion/phyllodes/
I know this is all so new and overwhelming. You are not alone. Do you know when you can expect to hear the results of the second opinion? How are you doing today?
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Cut and paste this tumor in the search bar here on mayo clinic. I see discussions on this topic from the past.