@minajo I have to commend you for all the work you are doing for your daughter. Though, work is really the wrong word. Has your daughter always lived at home with you? As someone who worked in a hospital (I was a nurse), I really think a care management meeting would be best for your daughter. A care-management team would include: you, 1 or two nurses, the discharge planners, social workers, hospital chaplain (if you wish), and maybe the doctor. These meetings were always very successful for the family. You will have a definite say in the discussions. What is 1 solution that you would like to come out of this meeting?