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Cisplatin & Pemetrexate OR Carboplatin & Alimta - Keytruda

Lung Cancer | Last Active: Sep 6 11:03am | Replies (14)

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@julie67

oh wow, thanks for the info. I do remember the Doctor who recommended the cisplatin therapy telling me hearing loss and possible need for IV antibiotics in the hospital for infections. He didn't say anything about feet because I surely would have told him I have Raynauds and asked if having Raynauds would make it more possible or vice versa.

When you say 2-3 weeks survival, are you talking like if we have months to live? Guess I am not getting this 'survival rate' thing as it seems like over half die before 5 year mark.

Saw pulmo yesterday for fluid on lungs followup. Gasping for breath just talking but oxygen was 99. He put me on Trelegy and agreed I was too weak to have a port put in. Sure, I smoked but NEVER needed any kind of inhaler before. Hope this goes away. Seems like my surgeon is a huge liar saying I would be back to normal and everything was fine. (If I don't look good, he doesn't look good, I guess...). Pulmonologist said I may never get better. like what?? I did all this for nothing. I'm too weak for chemo/port and totally disabled now. Day before lobectomy I had been workign 16 hr days doing hard labor non-stop. Would have rather lived 4 months eating/drinking/swimming than 3 months dying on a couch unable to breathe or even eat and sitting in clothes covered in body fluids and animal feces. and haven't even felt like having a box of wine or fifith of whiskey for a temporary escape. I don't trust any of them now. thanks for the info.

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Replies to "oh wow, thanks for the info. I do remember the Doctor who recommended the cisplatin therapy..."

Other things can cause shortness of breath. For me it was an undiagnosed heart condition. The cardiologist put me on lasix and within a couple weeks I was breathing much easier.

You have a better understanding than you know. When I mention that it increased survival by 2-3 week that meant that the average patient on Cisplatin lived 2-3 weeks longer than the average patient on carboplatin.

I send hope your breathing issues are swiftly resolved.