Hypothyroidism and potential hyperparathyroidism with nodules found

Ryan's,
😯 😯, these are some high TSH#'s. I have hypothyroidism and Hyperparathyroidism. They don't seem to have a lot to do with each other., except they are located in the same area of the neck.
My highest TSH was 8.7, lowest .3.
I think your # and my # are in the same measurements, based on a conversion chart. TSH should be less than 5. I have never heard of levels like yours before.
I am on 100 mcg of Levothyroxine/Synthroid.
I am also on Cytomel(Liothyroine?) for T3 and Free T4.
I am just a 65 yr old woman trying to find any way to feel better. I have several medical conditions. I say this, because I am aware that we might have different measurement methods, and other variables that I don't want to get caught up in the exact #'s.
That said, depending on how bad you feel, wil drive your need for a new doctor and answers.
I know that Hashimotos is a thyroid autoimmune disorder. I don't know a lot about it, but it would result in very very low thyroid levels, because your body is attacking itself. This could explain the super super high TSH levels. Your body is screaming for thyroid, Thyroid Stimulation Hormone. I don't know what the treatment is, but I am sure the levels of Synthroid you have been on, since they are even lower than mine, is not the answer. I found that the Mayo Clinic has online information on Hashimotos. Look at the list of symptoms, do you have a lot of symptoms?
Hyperparathyroidism (HPTH) is not related to low thyroid, but if you have an autoimmune disorder, it may be different.
The PTH is the main controlling mechanism for calcium. If your CA is low, your PTH will probably be higher. If your CA is elevated, then the PTH should be very very low. This can't be diagnosed with just a couple of test results. It usually takes a "trend" of low, high, etc.
What were your CA, PTH, VIT D levels?
There is 3 different types of PTH problems. Secondary, primary and tertiary. Parathyroid.com and swparathyroid.com each have loads of information.
Your last paragraph says some of your symptoms, they could all be related to hypothyroidism and/or HPTH, but for me, multiply them plus many others by 100. But, of course, the symptoms are also related to many many many other factors. Hence, why it is so difficult to get a diagnosis. HPTH and elevated calcium in much more common in females, so if you have it, you should expect to have to fight an uphill battle.
If you do have Hashimotos, you probably should get all the testing done, in addition to your TPO.
You can also just get all thyroid tests possible, done maybe once a month for 4+- months... and do the same with CA, vit D,PTH. without needing a n endocrinologist. At least that would give you some "trends ". What made you think of HPTH ? Most people, even those, like me, who do have issues, have never heard about it.
The nodules/? in your neck, you should get the report of that test, see exactly what it says.
I am willing to answer questions re HPTH, CA, vit D since I have issues with mine; probably surgery is what I need to do, but having 5 different doctors, 3 say no surgery, 2 say yes surgery. Has made me continue to struggle with my decision. I do know one thing for certain, doctors everywhere are not as "expert" as they used to be. I have 3 autoimmune disorders also, when your body turns against itself, it simply sucks‼️‼️‼️ShelleyW

I believe that many doctors and specialists as well do not understand all that goes on regarding thyroid issues. All the info regarding hypo and hyper can make your head spin. Do not get all hung up in the numbers from test results. It was discovered I had a goiter in my mid-30s with nodules when a doctor was pressing on my neck. She asked me "How long have you had that?", I had no idea what she was talking about. Blood work was done, no mention of anything regarding my thyroid on any of the several visits after that incident. She eventually then decided she wanted to order an ultrasound of my thyroid and do a biopsy so both were done. When I went back no mention of my ultrasound results or biopsy so I guess they were good, and, no treatment for thyroid but I have always been very overweight for many years 250 pounds. Now going forward 30 years I am 67 and was just told I have hyperthyroidism yet I am 338 pounds and have no symptoms of hyperthyroidism and they do not know the cause. The bottom line is that trying to find the cause takes so much time and tests. My TSH is very low but the other readings are normal. I am just living with it but I do have mild hand tremors. Just the stress of thyroid 'this and that' is not worth it to me. It is best to go by how you feel. Good health to everyone! Keep a positive mindset!

Elevated TSH means your thyroid gland is not producing enough hormone. Get a new doctor. Have nodules biopsied. Stay on thyroid hormones forever.

Please ask your provider whether an Afirma Kit (genomic sequencing) would be beneficial to you. Always ask what they’re looking for. Be proactive. Best of luck to you.

sps196, would you please explain more about the Afirma kit.
I have hypothyroidism(probably genetic from my mom but I have been treated for it only off and on. Hyperparathyroidism-screwy and erratic with slightly elevated calcium. I have not taken a calcium supplement for 40 years, last child born then. I eat very little dairy, no reason. If you are knowledgeable about HPTH, I would love to ask you about it. My relationship with PTH started 17 yrs ago, after 4 years of megadoses vit D, it finally led to late life diagnosis, age 49, of celiac disease, which severely damaged villi that won't recover even on GF diet. I got diagnosed as secondary HPTH due to malabsorption, celiac, issues. Now, depending on which of 5 different dr.s I consulted with, I have Tertiary HPTH with slightly elevated calcium, Sestimibi scan showed no tumor, but I may have hyperplasia in PTH that can't is overworked and stuck in the open position and continues to think I need more calcium. 3 drs say definitely have surgery on PTH glands, 2 say definitely not, wait and see. I am so confused, I have done lots of research, but now I'm too exhausted to do anything. Any help would be greatly appreciated. Thanx ShelleyW

You may find it helpful to look at the information available at the Tampa parathyroid hospital website. One thing I learned from them is that a normal calcium for anyone over 50 is less than 10. Anything higher can cause symptoms and will cause damage to many organs over time. If you need surgery they operate on more parathyroids than most places in the world. Take a look and answer the questionnaire on their site, it may be helpful to you

fluoride,
You are right, their website is great. I used it to help me make my decision about surgery. Mine is not a "normal " issue. I was diagnosed with secondary HPTH, due to malabsorption...that is how I got an endoscopy and diagnosed with celiac. Now 17 years later, I have converted to tertiary HPTH with elevated calcium levels.
Thanks for sharing this info and caring enough to share it. ShelleyW