1 Prolia injection

debis67, glad you are getting off Prolia. While I've heard that you aren't in as much danger of fracturing having had only one injection, and it wouldn't hurt to wait, I 'm not thinking that I would want an infusion of Reclast just a week before going out of town. You could have a reaction that might ruin your trip or make it difficult.
Prolia lowers CTX. That's it's whole job, why it works. Almost everyone goes ahead with Reclast with low CTX. And going off it will make your CTX jump. Might your adviser give you an oral bisphosphonate for the weeks that you are gone. And give the Reclast when you return.

I can’t take it in Pill form as I had Gastric Bypass. I can only have Reclast. I am very sensitive to meds and tried to get my Dr to give me 3-4mg of Reclast instead of the whole 5 mg. But he said he can’t do that and the only way he can is if it’s in black and White. I was told to wait until my CTX gets to 150-200. It was 89 when I had it taken on Aug 8th. I’m getting it checked again on Sept 16th.

You might remind your doctor that you have the right to limit what goes into your body. You could always tell the technician to stop the infusion when you are half-way through it. And stop means stop, Much better to plan on getting only half a dose but the other option is available.

How can one determine when they are “half way through” with the infusion; it also includes saline? Does anyone know why 5mg vs 2, 3, or 4 is indicated? Reclast has been around for quite awhile now and, as far as I know, the same dosage has been prescribed for every infusion I’ve had (since 2011).

Talk to your doc, find out if there are any other solutions, and find out the “black and white” of Reclast. Is there any research that answers the question of whether or not a smaller dose of Reclast is effective and how to determine the amount that has been infused (especially based on the patient saying, “Stop, I’ve had enough!”)

Best wishes to you as you work your way through this dilemma. Cheers! Go Penn State!

I have never had a lengthy infusion but I would assume one might be able to judge if roughly half the bag has been used. Not the ideal situation but the important thing is that we have some element of control and are not slaves to the medical profession. Much better to work WITH a doctor before any infusion.

On the question of effectiveness of partial dosages. you might want to peruse this article.

I have not had any experience with an infusion of Reclast. But I did ask the head nurse at my infusion center Thursday about reduced doses of Reclast. She has never done it that way nor has ever had an order come thru from a Dr that requested it. I was a little bummed because it was something I was hoping to bring up with my Dr. We know it has been done!
Go UT Longhorns!! 🙂

Sorry @normahorn, I just saw/read the article from your previous post.

While I did see research indicating lower dosage amounts and/or multiple infusions over a specified timeframe, I didn’t see anything about a participant deciding he/she had received the proper dosage and unilaterally telling the infusion tech to stop.

This is proving to be an interesting topic. 🧐

You raised 2 separate issues and I addressed both of them.

You asked for info in black and white that reduced dosages of Reclast could be effective. The article provided that. I believe it is Gently or Windyshores that has also mentioned several times that half dosage is as effective as full.

When actively considering Evenity, I mentioned to one highly respected specialist (not for osteoporosis) that I wish I could take half dosage as Evenity comes in 2 syringes for each treatment. She mentioned I could always leave after the first injection. I appreciated the sense of empowerment she gave me.

The “black and white” I was referring to was an earlier post by @debis67 who said her doc wouldn’t prescribe a smaller dose unless the doc saw it in black and white. I thought it best for her to find the black and white (which you provided) to the doc and go from there.

Although I strongly believe in being one’s own advocate, especially in a medical situation, I still feel it would be ill-advised to have the Reclast infusion needle in one’s arm, begin the infusion and then tell the nurse, “It’s about halfway finished and I’ve changed my mind about this or I’ve had enough . . . stop the infusion!” It goes without saying that we need to make the most informed decisions about our healthcare.

Some posters may remember that I switched docs because I felt like I was being railroaded into taking Prolia. I am not a fan of any of these drugs, but they are a lifeline in our fight. Perhaps @debis67 can use the information you provided here to secure a lower dose of Reclast.

Peace Out! Happy Weekend All!

The reason I’m wanting half dose Reclast because I am very sensitive to meds and I want to see how my body will react to it. I feel that 5mg. is too much seeing that I had only 1 Prolia and Reclast is a Potent med.