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DiscussionStruggling with decision to move forward with Allogeneic Transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Dec 11, 2024 | Replies (52)Comment receiving replies
Replies to "@deb913 Hi Deb We are so glad you found this forum and reached out about the..."
What a wonderful post. It sounds like my journey as I cruise to 143 days!!!! I love the Mayo clinic for this forum to let each of us know we are not alone!!!! If one has a supportive spouse, the stress is so much less for the patient. The spouse will need the support that is often part of the transplant journey.
Asto exercise, i started slowly walking while in the hospitals first 30 days, then almost from the day i got to my caregiver's home. At home every day. Just the last week morning and night. The mind and body have come alive. I join 2couples on my walk who show me how this can be a positive strengthener for a relationship.
Thank you for posting this story.
I'm recently diagnosed with MDS and am told that transplant is in my future. I'm scared of course but your story gives some hope. I'm 54 and pretty healthy - no other complicating factors other than MDS. I work out, play sports, and try to eat reasonably well.
I haven't 100% committed yet to going through with the transplant but it seems my choices are limited.
To hear that your husband did well given his fitness level is encouraging. I hope he is doing well today and I hope my journey mirrors his!
Thank you again!
Hi Mary, Thank you for reaching out. All the stories and encouragement I’ve heard from you and others on this site have been incredibly helpful. I have felt so alone and scared because the only people I’ve known that had an allo transplant died from an infection and it beyond helpful to hear all your wonderful, positive outcomes. I have to have the transplant, and all your comments are helping me feel more comfortable with that. I can’t thank you and everyone who has responded to me enough. It has meant a lot and helped tremendously.