I grew up with CMT because my grandmother, mother, uncles, and older brothers suffered from this disease. The main symptom is loss of sensation in the feet and lower extremities. My symptoms started when I turned 60. My oldest daughter started at 45. My younger daughter is now 49 and has not developed any symptoms yet. The Chronic Sensorimotor Axonal Polyneuropathy is an acquired disease. I started experiencing MS like symptoms at age 62. I have no sensation in my feet, legs, hands and arms. When it reaches my core it will attack my organs. I am also a SMA and GAN carrier. Fortunately, my children did not inherit the SMA and GAN gene mutations from me do those gene mutations will die with me. I also have three different blood cancers MDS/ MPN/MF plus Polycythemia Vera. I caught the blood cancers because I was in the Marine Corps. I was at Camp LeJeune and I was exposed to contaminated water and I served in Vietnam for 16 months and I was exposed to Agent Orange. It’s been fun.

Sorry my response took a long time. Not only am I suffering from Chronic Sensorimotor Axsonal PN, CMT2, and CMT4B but I've had MDS/MPN/MF (an extremely rare blood cancer overlap disease) for 7 years. The MPN component mutated to Polycthemia Vera which requires frequent phlebotomy treatments. Two months ago the MDS component mutated to CLL/SLL so things are getting tough. I use a cane to get around because my balance is awful. I'm allergic to lyrical and Gabapentine (I experienced double vision) so I can't take any nerve medication. For my blood cancer I take Hydrea, Eloquis and a baby aspirin. Not sure if the daily chemo regime of 1,500 mg of Hydrea contributes to my PN but I suspect it may be aggravating things. Anyone experiencing PN symptoms after being on chemo therapy?