Urgent help.. Sigmoid Volvolus, disabled adult daughter (autism)

My gratitude for your support
It was a sigmoid volvolus needing decompression
We're not consenting to any further surgery yet as her quality if life would be so affected with colostomy
She'd be in a awful long-term facility needin restraints to keep from pulling bag off
No day program anymore, she'll regress
to a vegitative status
We have support in CA from regional center for DD population
Had meeting yesterday
She has UTI now but with diapers, some stools few days ago no surprise
She's very groggy but not needing sedation
She's on clear liquids as no IV
She was so happy to see a Popsicle yesterday!!!
Many thanks to all for suggestions, prayers
We do have 24)7 aides as her autism, epilepsy requires it but i go to hospital from 9-11 pm
She needs me....

Pray to God for help in your decision. Put everything in God's hands. He will be there to direct you as to the best way to proceed. He knows of all your needs and your daughter's needs. It states that in the Book of Matthew. Also pray for your daughter. She must be terribly scared with all of this happening to her. Just talk to God like he is your best friend and he is. Ask him for help in this very stressful time for you and your daughter. Then, have faith and relax and expect a miracle!
I will be praying for both of you too!
PML

pml
I really liked your heartfelt message. Your strength in your beliefs is obvious and powerfully positive.
I was raised with these beliefs, but I lost them years ago.
Your message made me miss them. I am sure your message touched many readers.

@minajo
I have read through your posts, and I admire all of the thought and concern that you have put into this decision. It certainly is not easy!

You have sought the help and advice of professionals and are making best choice with what you know about your daughter and her health needs.

Will you continue to post and let us know how she is doing?

Shelley,
Thank you so much! I do have strength in my beliefs but it's not because I am a superior religious person. I am very religious but much of the time in my life when things were hard; i.e. no money and no food in the house, all we had left was prayer and belief in God. Believe me if we had had any money, we'd probably be out buying food instead of praying to God! But all we had left was our prayers and they always were answered.
You didn't lose your beliefs, you just misplaced them. Start by praying daily. God loves to have people talk to him. Not many people do these days. I think he gets lonely. Just talk to God like he's your best friend and he is. Also start reading the Bible daily. Just a few passages in the morning before you get up or at night before you go to bed. Read the old fashioned King James Bible. It's the original and also the only one they haven't tried to re-write. It's the Bible that when it was translated from Hebrew to English it was done on an island and God intervened so that the people translating it did so truthfully and they all had the same translation. When you do start reading the Bible you will come across the word "Kine". It means cows. I looked it up in a very old dictionary that I have.
God bless you! I wish you the best.
PML

@minajo
I have read through your posts, and I admire all of the thought and concern that you have put into this decision. It certainly is not easy!

You have sought the help and advice of professionals and are making best choice with what you know about your daughter and her health needs.

Will you continue to post and let us know how she is doing?

YES!! I am so grateful for all the suggestions, "hugs" 🤗My daughter still hospitalized and by lack of communication was given two clear liquid trays yesterday an hour apart and i left for an hour and when i came back ahe had projectile vomiting for 2 hours, no iv as with profound autism has pulled out 3
She was doing excellent day before on clear liquids and after the decompression procedure imagine how upset i was holding towels under her and worrying about damage to abdomen😢
Xray done and showed much improvement after decompression, volvolus resolved, some stool in transverse colon, now having soft bm's.. she needs to progress to soft, then regular foods, so she'll be in hospital for that
And she had a blessing
from a priest last night, may a miracle come to her we hope 🙏

YES!! I am so grateful for all the suggestions, "hugs" 🤗My daughter still hospitalized and by lack of communication was given two clear liquid trays yesterday an hour apart and i left for an hour and when i came back ahe had projectile vomiting for 2 hours, no iv as with profound autism has pulled out 3
She was doing excellent day before on clear liquids and after the decompression procedure imagine how upset i was holding towels under her and worrying about damage to abdomen😢
Xray done and showed much improvement after decompression, volvolus resolved, some stool in transverse colon, now having soft bm's.. she needs to progress to soft, then regular foods, so she'll be in hospital for that
And she had a blessing
from a priest last night, may a miracle come to her we hope 🙏

YES!! I am so grateful for all the suggestions, "hugs" 🤗My daughter still hospitalized and by lack of communication was given two clear liquid trays yesterday an hour apart and i left for an hour and when i came back ahe had projectile vomiting for 2 hours, no iv as with profound autism has pulled out 3
She was doing excellent day before on clear liquids and after the decompression procedure imagine how upset i was holding towels under her and worrying about damage to abdomen😢
Xray done and showed much improvement after decompression, volvolus resolved, some stool in transverse colon, now having soft bm's.. she needs to progress to soft, then regular foods, so she'll be in hospital for that
And she had a blessing
from a priest last night, may a miracle come to her we hope 🙏