← Return to Struggling with decision to move forward with Allogeneic Transplant

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@deb913

Hi Lori,
Thanks so much for your reply. It helps so much to hear from someone like you who has been through it; and the fact that you are 5 years out and feel good is so wonderful to hear. I’ll likely have the transplant at Emory Winship in atlanta. They admit you for one month, then at least 2 weeks at a nearby hotel and then home which is about 45 minutes from the hospital. It really helps to hear success stories like yours.

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Replies to "Hi Lori, Thanks so much for your reply. It helps so much to hear from someone..."

Hi Deb. Each one of us who have gone through the transplant process has entered into it with trepidation. For me it was an easy decision. I had no other options ahead of me. It was transplant or possibly a year or less of rapidly declining health with heavy chemo every 28 days until it no longer worked. I’m not one to be complacent and give up without a fight. I had the opportunity for a second 2nd life!! Of course I’m going to do it!

My transplant doctor was very upfront with potential risks. But the benefits of going through with the transplant way outweighed any downside for me. I trusted my doctor and my team. You will be able to do that too! Transplant teams don’t want failure either and will do whatever it takes to keep you healthy and have a successful transplant.

Right now, I can feel you’re stuck with the flight or fight instinct. I can only speak from my experience. Obviously, there can be some risks with a BMT but the positive outcome may leave you with a new immune system which would replace your defective bone marrow which is currently working against you. It could help you avoid AML and also potentially cure your lupus. It’s a lot to think about and a very personal decision. But if you need a cheer leader or an infusion of optimism, I’m here for you any time! ☺️