I had an appointment at the Mayo Clinic on July 29th.
I am still waiting for prior authorization for Evenity.
My Mayo Clinic endocrinologist's recommendation:
"I have recommended initiation of romosozumab. If this is not approved, then either abaloparatide or teriparatide would be acceptable options.
~Treatment with romosozumab would be once monthly for 6-12 months prior to transition to zoledronic acid 5 mg provided once every 12-18 months for 3 doses prior to consideration of bisphosphonate holiday.
~Treatment with either abaloparatide or teriparatide would be once daily for 12-24 months prior to transition to zoledronic acid as above."
I asked about Prolia instead of Reclast (zoledronic acid) and he said that he would not prescribe this drug. He said if I went off it my bone density would plummet. Unfortunately, I cannot recall the rest of his explanation. It was involved.
Earlier this year, I had a tele-health appointment with a metabolic bone disease doctor and his recommendation was Evenity followed by Reclast or Prolia. He said, if I understood this doctor correctly, in regards to Prolia, that I would have to be committed to it and I would probably have to take it for the rest of my life.
I have been concerned about taking Prolia because I also have Hypogammglobulinemia and my IgG levels are low. I have read that Prolia can affect the immune system. When I had a tele-health appointment with Dr. Keith McCormick he was concerned about this condition and told me to get the advice of an endocrinologist.
I am just starting my Rx bone building journey… Thanks to everyone who posts it has been very helpful.
@19kcm56
What did you decide after Evenity? I have 5 more months on Evenity and I have to decide. My doctor says Prolia but I don't want to do that!