The experience of AOS is frustrating enough when you have an answer, let alone when you don't. I've seen a number of patients who diagnose themselves before providers/tests catch up. Our team tries to support education so more people affected by this can get the right answers and more quickly.

Speech pathologists are able to recognize and diagnosis apraxia of speech and distinguish it from aphasia or dysarthria (a different motor speech disorder). I hope that between your speech pathologist and neurologist you will get some answers soon. An FDG PET scan is the test we have found most sensitive to brain changes associated with this. If that's not the type of PET scan you've had before, it might be worth inquiring about.