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Urgent help.. Sigmoid Volvolus, disabled adult daughter (autism)

Digestive Health | Last Active: Sep 4 8:41pm | Replies (36)
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@minajo

My gratitude for your support
It was a sigmoid volvolus needing decompression
We're not consenting to any further surgery yet as her quality if life would be so affected with colostomy
She'd be in a awful long-term facility needin restraints to keep from pulling bag off
No day program anymore, she'll regress
to a vegitative status
We have support in CA from regional center for DD population
Had meeting yesterday
She has UTI now but with diapers, some stools few days ago no surprise
She's very groggy but not needing sedation
She's on clear liquids as no IV
She was so happy to see a Popsicle yesterday!!!
Many thanks to all for suggestions, prayers
We do have 24)7 aides as her autism, epilepsy requires it but i go to hospital from 9-11 pm
She needs me....

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Replies to "My gratitude for your support It was a sigmoid volvolus needing decompression We're not consenting to..."
Teresa, Volunteer Mentor | @hopeful33250 | Aug 30 12:42pm

@minajo
I have read through your posts, and I admire all of the thought and concern that you have put into this decision. It certainly is not easy!

You have sought the help and advice of professionals and are making best choice with what you know about your daughter and her health needs.

Will you continue to post and let us know how she is doing?

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shelleyW | @shelleyw | Aug 30 6:43pm

Minajo, thank you for sharing this. I am so glad (wrong word for this, but can't think of any other) you have relief from the stress of the decision making process, for now. The popsicle smile 😃 was precious, YOU needed her smile, I want to think it was her way of saying I'm ok mom and I love you 💕. So, she is in the hospital full time right now? Will that be for awhile or permanent? I am so glad you have aids. Yes, she needs you and you need her, after all you are mom and daughter. You need and want each other's never ending LOVE 💕 💕💕.
I'm sitting here crying with, for, because of your beautiful love for her. I can't see the keyboard, more later. 🫂🫂🫂 ShelleyW

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