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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 hours ago | Replies (582)Comment receiving replies
Checking in with all my fellow BMT peeps this morning. How’s David doing? I think he’s at Day +7. The next few days can be a little rough until the new cells engraft and set up housekeeping. He’ll start feeling better when he has some neutrophils on the job again! ☺️
Did he have any issues with his post transplant infusions? Give him an air hug for me!
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Hi Lori. We are at Day 8.
It’s quite a ride. He had those cyclophosphamide IV treatments Sunday and Monday as an inpatient. He got pretty sick completely lost appetite and then constantly on the toilet. They did a culture and found “c dif.” Started on vancomycin to add to his cocktail of drugs.
Began to feel better Tuesday was eating so discharged on time. Went straight to bed.
Nausea managed well with medication.
Felt good Wednesday and appetite returned. Yesterday bowel issues which continued today. He’s very fatigued and those counts are plummeting (we will go back for a platelet transfusion this afternoon).
We are taking each day/new development as it comes and the Station 94 team is giving him great care, trouble shooting problems and answering questions.
Hoping for engraftment asap.
He’s an ideal patient, grateful and kind and still witty.
I’m doing ok during the days but oh my cresting anxiety at night.