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Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 days ago | Replies (549)Comment receiving replies
Replies to "Checking in with all my fellow BMT peeps this morning. How’s David doing? I think he’s..."
Hi Lori. We are at Day 8.
It’s quite a ride. He had those cyclophosphamide IV treatments Sunday and Monday as an inpatient. He got pretty sick completely lost appetite and then constantly on the toilet. They did a culture and found “c dif.” Started on vancomycin to add to his cocktail of drugs.
Began to feel better Tuesday was eating so discharged on time. Went straight to bed.
Nausea managed well with medication.
Felt good Wednesday and appetite returned. Yesterday bowel issues which continued today. He’s very fatigued and those counts are plummeting (we will go back for a platelet transfusion this afternoon).
We are taking each day/new development as it comes and the Station 94 team is giving him great care, trouble shooting problems and answering questions.
Hoping for engraftment asap.
He’s an ideal patient, grateful and kind and still witty.
I’m doing ok during the days but oh my cresting anxiety at night.