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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 9 hours ago | Replies (598)Comment receiving replies
Good morning, @caregiverx2 I was hoping to see an update from you with your husband’s SCT transplant. My by reckoning I think he’s on maybe Day +7 or 8? He may be entering generally, the roughest week post transplant. How is he doing? The job of caregiver isn’t an easy one so, how are YOU fairing?
Replies to "Good morning, @caregiverx2 I was hoping to see an update from you with your husband’s SCT..."
My husband is on day 87. Everything is going well except for some issues that may be caused by the tacrolimus. He should start tapering off the tacrolimus at day 100. We are hoping this will relieve the kidney issues and the hand tremors. The time has flown by. Can't wait to get back home.
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@loribmt
He is doing better. He developed Cytokine release syndrome on day +1 and had chills and fever for a few days until they gave him Chemo on days 3 and 4. The fever went away by day +5, but then the diarrhea came. He is on day +9 and I think everything is "back to normal". His white blood count is down to basically nothing now and he gets a bag or two of platelets every day. His hemoglobin is slowing dropping, so his fatigue is increasing. But other than a few rough days at the very beginning he is doing well and is in good spirits. He jokes with the nursing staff and has made friends with some of the other transplant patients. He will be inpatient for another 10 days at least. It depends on when he starts grafting.