Pelvic pain

Posted by dudashen @dudashen, May 11 11:51am

Does anyone else suffer from chronic pelvic pain?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@rashida

@terry1976 general physicians are in short supply where I live in Canada and specialists here are even less available. My husband and I are two of the lucky few who were fortunate to find a family doctor a year after moving to another city and there are hundreds of residents who have been living here longer than we, still looking for a family doctor. My doctor has sent out several referrals to gynecologists in the city as well as outside our city area, but every one has been rejected as none of the gynecologists are taking new patients. She did refer me to physiotherapy but our government plan only pays for six half hour sessions. I was referred to physio for neck pain and knee pain and during the six session I only managed to get some exercises for my neck.

My family doctor told me my pelvic ultrasound showed fluid in my uterus and there was an area she saw that concerned her but we haven’t been able to find a gynecologist for me. The one gynecologist she personally discussed the ultrasound with just told her fluid in the uterus is nothing to worry about and if anything it gives a clearer picture of the uterus. She is not worried about the results at all (yet another she discussed her concern with told her an endometrial biopsy would be the only way to know for sure). If specialists dismiss a concern, a family physician just has to take their word for it because they know the health plan will not pay for any “unnecessary” tests or procedures.

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maybe your doctor can refer you to a urologist. I haven't seen that mentioned here yet. A lot of people have pelvic pain from Interstitial Cystitis (IC). I had a lot of pain when my hormones fled! As everything shriveled inside. Later ending up with IC. Now I am treated with DMSO Instillation Therapy. Works wonders! Went thru many things/tests/meds but nothing turned up positive until the IC diagnosis after 6 years of nightmare!

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@loriesco

maybe your doctor can refer you to a urologist. I haven't seen that mentioned here yet. A lot of people have pelvic pain from Interstitial Cystitis (IC). I had a lot of pain when my hormones fled! As everything shriveled inside. Later ending up with IC. Now I am treated with DMSO Instillation Therapy. Works wonders! Went thru many things/tests/meds but nothing turned up positive until the IC diagnosis after 6 years of nightmare!

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I had a cystoscopy just before I moved to this city and no problems seen.

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Precious Folks, I had interstitial cystitis for years.....very painful. It went away on it's own 8 years ago.

This summer I started back with pelvic pain. I had an irritated bladder due to the following foods & supplement:
Tomatoes, strawberries, cantaloupe, watermelon & B-complex vitamins. I stopped all of them and my bladder pain went away. Who knew that any of these outside of tomatoes was acidic to your bladder.

I pray that all of you get great relief from pelvic/bladder pain. Blessings & Prayers....

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@rashida

I had a cystoscopy just before I moved to this city and no problems seen.

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@rashida
A cystoscopy can miss interstitial cystitis (IC) if it's performed in an office and doesn't involve hydrodistension. IC is also known as bladder pain syndrome (BPS), and a cystoscopy can help identify abnormalities in the bladder that are typical of IC/BPS. However, the bladder needs to be filled with high pressure during a cystoscopy to see these abnormalities, and this can be painful if the patient isn't anesthetized. In addition, in-office cystoscopies may not be able to identify glomerulations, which are pinpoint sites of bleeding on the bladder wall that can be a sign of IC/BPS.
The Interstitial Cystitis Association says that cystoscopy with hydrodistension is no longer the standard method for diagnosing IC/BPS. However, some clinicians still consider cystoscopy to be mandatory, and the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) has established cystoscopic discovery of glomerulations or Hunner lesions as a diagnostic criterion for IC/BPS. However, many experts agree that the absence of these findings doesn't rule out IC/BPS.

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@covidstinks2023

Precious Folks, I had interstitial cystitis for years.....very painful. It went away on it's own 8 years ago.

This summer I started back with pelvic pain. I had an irritated bladder due to the following foods & supplement:
Tomatoes, strawberries, cantaloupe, watermelon & B-complex vitamins. I stopped all of them and my bladder pain went away. Who knew that any of these outside of tomatoes was acidic to your bladder.

I pray that all of you get great relief from pelvic/bladder pain. Blessings & Prayers....

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actually - the tomatoes are acidic to the bladder the other things are not. I take B12 intravenously. Anything "chalkie" can be hard on the tract. Especially coffee and wine. I started adding aloe vera gel to both. https://health.clevelandclinic.org/foods-that-irritate-the-bladder

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@loriesco

@rashida
A cystoscopy can miss interstitial cystitis (IC) if it's performed in an office and doesn't involve hydrodistension. IC is also known as bladder pain syndrome (BPS), and a cystoscopy can help identify abnormalities in the bladder that are typical of IC/BPS. However, the bladder needs to be filled with high pressure during a cystoscopy to see these abnormalities, and this can be painful if the patient isn't anesthetized. In addition, in-office cystoscopies may not be able to identify glomerulations, which are pinpoint sites of bleeding on the bladder wall that can be a sign of IC/BPS.
The Interstitial Cystitis Association says that cystoscopy with hydrodistension is no longer the standard method for diagnosing IC/BPS. However, some clinicians still consider cystoscopy to be mandatory, and the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) has established cystoscopic discovery of glomerulations or Hunner lesions as a diagnostic criterion for IC/BPS. However, many experts agree that the absence of these findings doesn't rule out IC/BPS.

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@loriesco yes, my cystoscopy was done at a hospital with a local anaesthetic.

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@rashida

@loriesco yes, my cystoscopy was done at a hospital with a local anaesthetic.

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it was the last sentence to focus on. The procedure is not determinate. You should find a urologist who specializes in IC . There is one here in San Diego. The one I see does not treat the Pelvic floor pain as as needing physical therapy but some do. There's a gal on the internet who goes through the whole 9 types and how to address it.
I also used pyridiaum and that was helpful before I got into the Instillation DMSO therapy.
you might want to watch these: https://www.youtube.com/@icnjill

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@loriesco

it was the last sentence to focus on. The procedure is not determinate. You should find a urologist who specializes in IC . There is one here in San Diego. The one I see does not treat the Pelvic floor pain as as needing physical therapy but some do. There's a gal on the internet who goes through the whole 9 types and how to address it.
I also used pyridiaum and that was helpful before I got into the Instillation DMSO therapy.
you might want to watch these: https://www.youtube.com/@icnjill

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@loriesco I live in Ontario, Canada. San Diego is too far, and unaffordable. Unfortunately unlike Americans, Canadians are under a government health plan and treatments have to be approved by the health plan.

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@rashida

@loriesco I live in Ontario, Canada. San Diego is too far, and unaffordable. Unfortunately unlike Americans, Canadians are under a government health plan and treatments have to be approved by the health plan.

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Julie's website is "virtual." You don't need to go anywhere. Take some time and watch her 9 videos. They cover pelvic floor issues related to IC. Americans are also under a government health plan. No different anymore really. (I know Canadians). I have to BRING my issues to the doctor and she refers me to the specialist. Sometimes I go outside because it is too slow or their approved coverage doesn't extend to my need. Of, course, that is why THIS group exists.
I see you are frustrated and defeated. The truth is that if you want to be relieved of any health problem it is you who will need to do the homework. The doctors no longer do that. They only have time to treat the obvious. Although they are skilled -- they no longer "dig" for the answers to our problems. Get a second opinion. Go to a different type doctor if you are not resolved. Appeal your doctors decisions to the plan. but you will need to do homework.

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I have pelvic pain and they diagnosed it will endometriosis.

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