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Fatigue after radiation

Breast Cancer | Last Active: 6 days ago | Replies (85)

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@sue417

Hi
I will be going into my fifth month post radiation. So
I thought by now my fatigue would be better but It seems to be worse. I Find now I Have it all day and At Six o'clock it leaves And I feel Normal. How do you keep your sanity is my question. Having brutal menopause symptoms along with fibromyalgia. I got a new g .p. Awaiting to get on some medication. He wanted me to track my symptoms for 1 month which I think is nuts because i'm suffering. But I have no choice. I see him the second week of september. He Says he's putting me on one medication Fibro, Menopause and,anxiety. Hopefully whatever it is it will work. I think that this post cancer treatment should be followed better.

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Replies to "Hi I will be going into my fifth month post radiation. So I thought by now..."

https://www.massgeneral.org/news/press-release/researchers-identify-hormone-that-drives-fatigue-after-cancer-radiation-therapy
According to this research LDN low dose naltrexone might help. I don't know enough or have any experience to recommend it.
I found post cancer treatment to be non-existant.
I don't expect a GP to know anything about radiation effect or LDN which is also used for pain. You might fare better seeing a pain specialist, getting a trial of LDN for pain and then see if it helps the fatigue.

I'm sorry you are havimg this. It seems like once you've been treated the money is gone, so no one cares. I had to beg for every PET/CT following rectal cancer. The cancer type was misdiagnosed according to the genetics of the tumor, which I didn't get back until after treatment because they forgot to send the pathology.
My oncologist was gone for the first three weeks of treatment. His nurse had migraines and wasn't there even when she was. The first pitch-hitting oncolgist didn't know how to open my treatment plan chart, the second said he wouldn't discuss it with me because he didn't want to contradict the radiation oncologist.
I had trouble getting the medication the dr had approved ahead of time because the nurses didn't recognize the generic name. The office refused to order protective strips and when the medical company Beekley sent them to me gratis, they wouldn't let me use them for the first three weeks when my oncologist returned.
My doctor moved to Florida. I had radiation proctitis. All these doctors told me that I would just have to live with it. But I found a procedure on PubMed that was successful.

I couldn't figure out why so many metastasis go wildly unchecked. Now I know: No aftercare.
It sounds like your GP is buying time until they can research radiation burns. You might send the link to them. They might refer you to a pain specialist. LDN isn't so very difficult to get a prescription for. Where do you live. Bless your struggle with luck.

Hi
Not sure.
If you're responding to me but I don't have radiation burns. I have severe fatigue from radiation And menopause symptoms and fibro. So sorry you went thru all that

sue 417, I was and got so caught up in my radiation history. I meant to say until they can research radiation fatigue. The article is about both. Hope you find resolution. Thanks for the sympathy.

Sounds like you have several fatigue inducing issues. I don't think we consider what our bodies go through with each situation. I know I didn't. I gave in to short naps when I needed them. I also walked as much as I could. Sounds counter productive, but I felt better after my walks than if I skipped them altogether. Cancer and the treatments we have take so much out of us. We need to fight back to get to the new normal we can achieve. Good luck and do what you can do

My radiologist at Mayo gave me some information on radiation fatigue. He said I could take Ginseng extract (Wisconsin type), which I found at a natural foods store here in Rochester. I didn't have a lot of fatigue, so can't say how well it works. Hope that helps.

I'd love to hear how you get on.
I'm post op & awaiting radiation treatment.
I within two week when disgonoserc with Er poss B.Cancer abruptly stopped HRT put on Letrozole & then had op. I've Fibro, CFS, Arthritus other health issues.
The fatigue & pain has just got massively worse so I'm really dreading radiation.
Any advise would be welcome .
I hope you get some help & answers.

Hi
Those AI meds are brutal. I opted out because I was stage 0. If your joint pain I and symptoms are worse talk to your Dr about trying a different med if you choose to take it

I had severe fatigue, had to drive myself an hour, and would go to bed when I got home for a good two hour sleep. That was four years ago. Today I still lay down in the afternoon for a nap. They last from half hour to hour and a half. My body tired more easily. Everyone has to listen to their bodies and honor what they ask for. I never would even think of napping before, but would be cranky around 4 oclock, all thru my working life. Now I have a quick nap maybe every other day. I feel so much better.

The drugs crippled me so I stopped and this is my 5th year. A 5% chance of not recurring just wasnt worth it. I still cannot bend my fingers. The fillers in these drugs are crippling.