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Polymyalgia Rheumatica (PMR) | Last Active: Sep 19 5:47pm | Replies (38)

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@nyxygirl

Hello @anncoco57 ! You may want to share a bit more about what you are experiencing . Where do you live ? who prescribed 15 mg dose, your PCP or a rheumatologist ? You will not "hate" being on Prednisone when at the optimal dose* you will miraculously be rid of morning pain and stiffness ! @johnbishop and I usually encourage new patients to keep a pain journal /database .

*So for me, and many others ( who started on this journey at about the same time last year ) I was bumped up to 30 mg Prednisone. Voila - it was amazing !

have you seen this useful website. PMRandIL6.com ? I will attach a few more manuscripts , my favorite one about how people describe the pain and stiffness will take me a sec to find !

I got so much out of being on this forum - the support from everyone has been a big help ! -- nyxygirl ( Maria)

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Replies to "Hello @anncoco57 ! You may want to share a bit more about what you are experiencing..."

Hi thanks

I’m 67 and live in the uk . I’m used to getting up and going in the mornings, now bits at least 10 am before I can do anything

The steroids are spacing me out , my sleep patterns are all over the place and I’m gaining weight .

This is playing havoc with my moods

I have a doctors appointment today so will see what she says

Has anyone had any luck with changing thier diet to avoid carbs etc

The morning pain varies at best it’s a fluey like feeling and at worse it’s bad pain